Re: Back From Germany

From: Sally Grigg (
Sun Apr 27 14:56:48 2003

Dear Laura, When you say Dr. K do you mean Dr. Kruschinski or Dr. Korrel? Both of them work in Germany. I'm so happy to hear that you are well. For so many years almost every story on this board was about pain, death, suffering, depression, etc. To see that people are being helped and are clear of their suffering is an answer to our prayers. When people say its expensive, I added up what my previous surgeries cost (every year and sometimes more - just to keep me alive) My poor husband and I work and work (we have an Inn, so I would lay in bed and take reservations and answer questions) and work and thats okay.However,I never got any better.The adhesions would be back within a week. Not one pain free day. Most experts do not take insurance because most policies set limits on what they will pay and my company (supposedly one of the best) will only allow $1,500 for an adhesion operation even if it takes 6 to 8 hours which it usually did. Then the doctor has to lower his fee to the approved insurance level. None of them will do this of course. I don't blame them. At $1,500 they can't even cover their costs. They need to cover their expenses and support their families. Anyway, my entire trip to Germany cost either about the same or less than my other operations (except the first few) These first few operations were not done by adhesion experts, but by nice doctors who did not know what they were doing. They actually did major damage. One cut open my bladder (big time) then opened me up to sew it back together. He had to do that, no choice at that point.He is my new local Gyn. and I care about him as a person. He has been very good to me. However, he won't operate again and I don't want him to. Even though my insurance covered the cost, the outcome was not good. Still had the adhesions, the pain, etc. but now I had one more worry - my bladder. Thank God it turned out okay and my bladder healed up fine. Sorry to go on and on. With kindest regards, Sally Grigg

At Sun, 27 Apr 2003, Laura wrote: >
>To all you fellow long term suffers of the SNEAKY MECHANICAL DISORDER
>called adhesions;
>I am back from Germany. Dr. K. did my adhsiolysis. I had surgery in
>the US last Nov, and an OBGYN removed adhesions in my pelvis (from
>peritonitis) but he saw a mass in the ULQ (upper L quad) and was afraid
>to deal with it (even tho he had assured me that he could deal with any
>thing in the ABD cavity.) Those pelvic adhesions apparently did not come
>back., but DR, K. found a very large mass that included an (old)
>ruptured spleen wrapped up with small bowel and omentum that stuck to my
>rid cage for about 6 inches. This mass was pulling the spleen and ribs
>together. I could not lay down for about 10 years, sleeping sitting up.
>I could not take a deep breath and had a loud friction rub left lung. I
>also had all the bowel back up symptoms and assotiated long term
>complications from that ( most of which appear resolved after this
>recent surgery).
>Don't let any one tell you that you are depressed, or that diet exercise
>etc. will cure you. Most of us have tried all that anyway out of
>desperation as well as many other things, and just became even more
>discouraged when that failed to really help. These blind alleys make
>you doubt yourself. The cruelest thing of all the MANY tests they do
>here (and waste thousands of dollars doing) is that they can serve to
>confuse you, but the Docs know that adhesions don't show up on them. If
>they want to do yet another small bowel series, ask yourself if you have
>problems with fluid going down as you walk., or do you have problems
>with solid food going thru, especially after lying down after dinner?
>Consider all the tests, and nuclear med. and then think of me... I was
>labeled cardiac and got every possible work up including cardiac cath
>and was even told I might have to have my pericardium removed. Bullshit.
>All the while I kept saying I think I have adhesions. As a nurse, I had
>patients with peritonitis, and alot of them got adhesions. The mistake
>I made was suffering in silence (only my hu8sband really knew how bad it
>was). When tests come up neg. you really don't want the Docs to think
>you are a wimp, or even worse,a hypochondriac,menoppausal,depressed
>feamale with stomach problems!!
>Think of adhesions like any other mechanical prorlem, only they can
>affect many body functions and organs and will not go away by themselves
>and so they must be dellt with. As a patient, I had sucess with Dr. K.
>and I highly recommend him and his wonderful nurses. I am wishing a
>cure for all of you,

Enter keywords:
Returns per screen: Require all keywords: