Re: My Surgery report
From: Sally Grigg (LostCst@mcn.org)
Thu Apr 24 14:40:20 2003
At Wed, 23 Apr 2003, Sue wrote:
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>Well, I am so totally bummed out, I just read the surgury report form the Surgeon. done on 3-21-03.
>
>remember how I said, I felt SOOO good, and then in about 10 days, the SAME pain started to creep back." well, it seems she "Saw" my abdominal cavity "full" of many adhesions, and got many of them, but the place I complained about most right over my liver..... the report says this....
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>"there were adhsions between the anterior lateral abdonimal wall and the right colon. the large adhesion was taken down sharpley using Metzenbaim scissors. We placed a suprabubic 5mm port under direct vision.....we then viewed the upper abdomin. there were many adhesions between the omentum and the anterior abdominal wall along the midline. there were alot of dense adhesions between the omentum and the underside of and the top side of the liver, and I elected to leave those intact as I could not directly see where the liver started and ended. the area of pain in the epigastic area was situated where there was alot of adhesions near the midline. they were lysed as best as could be."
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>this means, she saw MANY adhesions, only taking what was easy to get to. where she cleaned me out, I am feeling great, the original PAIN I went in for, she left most of them, because they cover my liver. I am crying as I type this, because I am so frustrated.
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>She said to me, many doctors do not believe it is adhesions causing pain. I just looked at her, in disbelief. she SAW...took a picture of the "rope" adhesion connecting my liver to my colon.. and she need I was feeling so much pain, my words to her were...I HAVE NO LIFE!.... and she says..drs don;t think adhesions cause pain.
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>I am in PAIN.. almost every day, I am in PAIN. I hoped so much that this would end the pain. now, I will sooner or later need to find a surgeon that will go in...cut me wide open again and clean me out. I was toild 25 years ago, the adhesions embedded in my spine would cause trouble later, but they were afraid of causing paralysis if they dug in there too deep.
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>I need to come to terms with this setback, and work through it, because I am so upset right now.
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>just wanted to share this so some of you that are getting the run around, know it is NOT JUST YOU!
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>--
>Sue
>
--
Oh, my dear Sue, I'm so sorry. Its too typical however. Obviously,
adhesions cause pain and your doctor does not have the skill level
to operate on you. You need an Adhesion specialist. And what is this
about a big open operation. No, no, no. There are doctos who will take
the time, hour after hour and get ALL of your adhesions even if they
operate all day on you. You need Dr. Kruschinski or one of the other
now world renowned specialists. Please don't give up and let an idiot
operate on you and open you wide. That's going to cause you more problems
than you have now. Have faith, many here are being helped. I'm so sorry
you are still in pain. Its such a bummer. We're here for you. Sally Grigg