Re: My Surgery report

From: Sue (
Wed Apr 23 23:06:42 2003

WP, I am so frustrated today, because I I DO know that drs don;t want to take the time and effort, ect.. everything you have said. I want to lite a fire under some drs. butts and say....we have a NEED for ADHESION SPECIALISTS!

who knows, maybe we can get a movement going, and some of these new drs coming up, maybe they can get paid for doing a good AND THOROUGH clean out. MAYBE there is a silver lining just around the corner....well, we CAN dream!

I know this is something that I will deal with until I die, but I was hoping for some relief, even a little.

thank you for writing.


>----- Original Message ----- From: "winged phantom" <> To: "Multiple recipients of list ADHESIONS" <> Sent: Wednesday, April 23, 2003 6:29 PM Subject: Re: My Surgery report

> Sue, I certainly did not mean to throw a bowl of cold water on you. But > from what I have gleaned here on this site, it's my understanding that, > partly because of the way the insurance companies force the doctors to > work, that even if the doctor was skilled enough to do a successful > adhesiolysis, the insurance would not compensate for the time needed. I > have also heard that all these surgeries in Germany take a good 6 hours > or more! What insurance company would pay for that time here in the US? > Also, from things that Helen and others have written, these adhesions > are sometimes so tightly bound that it's hell to pay to get them off > without seriously injuring other organs. Is your gynecologist trained > and experienced for that type of surgery? How many successful > adhesiolyses does she do each year, especially if she doesn't even admit > to their causing pain? Plus, I noticed that you did not mention that she > even attempted to use any of the current barriers available for use > here. Did she? What methods did she use to try to minimize their > reformation? > > I'm not happy that your surgery did not turn out as you had hoped. I'm > very disappointed for you. I'm only relieved that you were not injured > in the process, because what I heard from the wording you gave on the > report, was that your surgeon really did not have the technical > knowledge, the time, or the patience to remove the worst adhesions. I > wish this were not a sad fact of life for many women, but it seems to > be. > > I'm very sorry to have upset you; I know you do not need more > aggravation in your life. > wr > > -- > I have no history of abdom. surgery; have had a few cysts > Fall 2002- extreme pain and constant bloating > 1/2/03- laparoscopy, hysteroscopy, and D&C > 2/12/03- TAH/BSO for adhesions caused by non-symptomatic > endometriosis (only dx'ed on pathology report) > Now?- rigid belly; abdominal pain, tenderness and > bloating; plus continuing bowel problems likely caused > by new adhesions >

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