Re: 'Spontaneous' Adhesions

From: Sally Grigg (LostCst@mcn.org)
Tue Apr 22 19:56:40 2003


At Tue, 22 Apr 2003, Nina wrote: >
>Started "getting sick". About 4 years ago. OB tried me on all
>conceivable oral contraceptives in order to control what he anticipaited
>was Endo. Then 20 months ago appetite was so poor and pelvic pain so
>bad went in for Lap. He was surpriesed that instead of Endo it was
>normal scar tissue. He found 3 "massive" adhesions binding my bladder
>to the pelvic floor and wrapping the bowels. Problem is I had never had
>previous surgeries. About 1 month later again started feeling that oh
>so familiar tightness in RLQ. Went in for 3 mo F/U and he told me that
>it was not possible to grow back so quickly. 6 months after Lap went
>into IBS crisis and have been dependent upon Miralax daily ever since in
>order to maintain bolwel function. Around the same time began having
>excrutiating upper back pain that had such a crushing sensation that it
>would make me sick and affect my ability to breathe. Pain would wrap
>around to my chest. During the entire time flipped from one rx to
>another to control growth and symptoms. 2 weeks ago went in for my
>second Lap in 2 months. Results were 2 hand size adhesions that had
>adhered my R and L lower bowels to the abdominal wall, and a 2 handed
>size piece that wrapped from the colon, around the intestines and to the
>ovarian tubules.
>
>It is now 2 weeks post, and I am having RLQ cramping again. The other
>concern is that the back pain has not really subsided since the lap. MD
>at F/U appt said it is because "they had to beat me up inside" to remove
>tissue and tio give it 4-6 weeks.
>
>First question is: Is it possible for adhesions to form further up the
>back where they can not find it with a lap?
>
>Second question is MD has recommended Lupron or Merian (an IUD) or Depro
>to put me into early menopause. I am 30 years old w/ the intention of
>getting pregnant at some point in the future, but do not want to have to
>rush into it just because of adhesions. I have no chidren yet and have
>been dreaming of mine since I was 9 years old. Is artificial menopause
>the common solution to spontaneous and unexplained adhesions? Until we
>make a decision I continue on Miralax and Ortho
>
>Any help would be appreciated
>
>--
>Nina
>

--
Dear Nina, I'm so sorry you have to go through this. Adhesions are awful.
I've never heard of early menopause as an answer to adhesion pain/problems.
That doesn't mean that doctors don't do it, as I'm not a doctor, I hesitate
to give advice, but early menopause may not be your best answer. Many of us
here on the adhesion board have not been able to have children due to adhesions,
abd yes, they can occur without operations. Any trauma, including a baseball
thrown into your stomach as a child, can bring on adhesions, or a car accident
in which you were not hurt but your seat belt cinched you up too tight and
caused trauma. A great many things can cause adhesions. You need a speicalist.
I've raised many children, but never my own blood children. And I would have loved
to have had children with my husband.  It was not meant to be. Perhaps you should
seek advice from a specialist. I don't believe that artificial menopause is a
common solution to "spontaneous and unexplained adhesions" The reasons why they
are there are just not know, but there are reasons. There are a few doctors who
specialize in adhesions. I think you should email an adhesion doctor and try to find
other answers, other than one which will leave you unable to bear children. Try
Dr. Kruschinski in Germany. His web site is http://www.EndoGyn.com and his email is
Daniel.Kruschinski@EndoGyn.com  Good luck and please don't make any hasty decisions.
There are only four or five adhesion experts in the world, as far as I know. You
need one of them. Hopefully, you can get cured and have babies. I wish you well.
With kindest regards, Sally Grigg

Enter keywords:
Returns per screen: Require all keywords: