At Thu, 6 Mar 2003, Meg Rose wrote:
>
>I thought I was alone..crazy..I could list so many and I stumbled onto
>this and cannot believe my eyes.I have noone to talk to about my issues
>because noone really gets it.I can see I am not alone.What a relief.
>Maybe someone out in this big cyber-world can tell me I am on the right
>track.
>I need to share my history so you will know what has happened to me,as
>well as it may help to just get some of this off of my shoulders (as I
>am carrying alot)
>I will try to be brief so I don't tire you out.
>I NEED to know I will be o.k.
>In 1993 I came down with a pain under my belly button in March on a
>blustery Tuesday a.m.I took mylanta with no relief.I was not miserable
>but as time went on I was not having fun.I waited until Thurs.to go to
>an urgent care clinic as we had just relocated and did not have a dr.
>yet.The dr. gave me a mixture to drink and thought it may be an
>ulcer.If it wasn't better by the a.m. I was to call.It was not better
>it was worse so I called and was told to go to the e.r.It was 8a.m.and I
>went to the nearest e.r.My husband drove me in.At this point I could not
>stand or walk.I threw-up in the parking lotwhich was unusual because I
>just don't puke often.The e.r.did some tests (blood...white count a
>liitle highl,urine...fine etc.)Nothing really.The doc gave me some pain
>meds and cramping meds and said it was probably the flu and sent me
>home.By noon I was in tears.My husband picked me up and carried me to
>the car and back we went to the e.r.This time the doc did no more
>tests..only an x-ray.He saw a big fluffy white patch on my right and
>called it a "paucity"of air.He gave me more pain meds and anti-puke meds
>and instructed my husband to stop on the way home and get some milk of
>magnesium and a enema for me.I got home and took the m.o.m.and went to
>the toilet and did the enama.I thought someone had shot me.I landed on
>the floor and rolled around on the ground.My husband works nights and
>had been awake for 25 hours so he dosed and was not aware of me rolling
>around.At 8p.m.I went back to the e.r.This time they did an ultra-sound
>and found a cyst on my "left" ovary.They prepped me for surgery for
>1p.m.At 1p.m. they told me I was bumped till 5p.m.They tried to keep me
>comfortable with morphine.The surgeon did a little hole to go in and
>found my appendix had ruptured.4 "s of my bowel had perforated.I was
>full of feces.She removed part of my bowels and gallbladder.the surgeon
>told my mom and sis that in her 20 years I was the worst she had ever
>seen.
>I stayed for 6 days and sent home.2 weeks later I had severe pain again
>and they found a pocket infection the had to drain trans-vaginally.That
>hurt like hell.2 cups of infection came out.And then 2 weeks later I was
>in severe pain again and the tried to go in my belly-button to remove
>that cyst on my ovary and they couldn't get in very easily.The surgeon
>told me it is as if someone opened my abdomen and poured honey in
>it.Everything was stuck together.I was 99% probability of being
>sterile.I do have 2 boys and was done having kids but still....
>I have had bowel trouble and mostly period problems but for the most
>part I came out of it pretty good.The period problems became worse in
>2000.Very painful and never-ending.So I had a complete hysterectomy
>5/2002.The OB said I was a mess.My ovaries crumbled.Every one of my
>organs was adhered to other organs.He had to chisel my uterus and tubes
>away so he could remove them.He put that sepra film in to prevent
>further adhesions.In June I came down with really bad buttox pain.My OB
>said it is common to have it after.My family doc treated it as back
>pain.I won't go into all those details butI have been in and out of the
>e.r.I have had injections in my back.CT...MRI...ETC.I kept saying it
>sure was coincedental this started after surgery.I have been on percocet
>for pain since June.It helps me so I can work and function.They tried so
>many anti-depressants.muscle relaxants,NSAIDS,etc.with no relief.I was
>sent to a pain specialist finally to get help as the percocet wasn't
>working as well.Of all the dr.'s the pain doc is the one who said it was
>not my back.He heard me.He listened,spent 2 hours talking to me and then
>talked to all the other drs.He said it is in my pelvic area.Deep in my
>butt to the right.He sent me to another OB who I saw yesterday who said
>he was glad he wasn't the one to do my hysterectomy because it was so
>difficult(he had the path in front of him).He told me it sounded like
>ADHESIONS!!!!!He said they can attach anywhere and strangle your nerve
>endings.They can attach to your spine.They wrap around anything.Is this
>true??He told me surgery in my case is not an option as it can create
>more.He said it is going to be tough to try and find the exact area.He
>said they may not.WHAT...DID I HEAR YOU RIGHT???
>Can this go on forever???Can they really not find the source of this
>unbearable pain???This is ruining my life.It is putting my job in
>jeopardy.My familt is suffering along with me.I am now on 75 mg.
>duagesic patch which helps but I still need my percocet every 4 hours.I
>am depressed yet awake all night from the pain.I have meds that help for
>3-4 nights and then stop (Trazadone)helping me sleep.How many more days
>do I have to take all this med?Please tell me this will get better.I am
>not a very good patient.I am so tired of drs.,meds and being a guinea
>pig.I am scared that my meds will stop helping completely.How do you
>live with chronic pain??How do you take a vacation from yourself??How do
>you want to keep living??HELP PLEASE.
>Thankyou in advance