Re: Thank god I found all of you

From: Robin M (rmasse2333@aol.com)
Fri Mar 7 07:16:12 2003


Dear Meg WOW, I am sorry you are going through all that you have. Adhesions are hard to live with. This can & does go on for years. At this time, your best hope would be going to Germany for surgery. They are using Spray Gel there that is a wonderful barrier to prevent the adhesions from returning. I had my first c-section in Oct 83 & the pain started late Nov. My next c-section was Nov 84 and my first surgery for adhesions was Aug 85. The last 5 years have been the worse for me. I have not worked in 6 years and at this point, I spend most of my day in bed. Sometimes just getting up out of bed to go to the bathroom causes more pain. You certainly have come to the right place for support, information and understanding. The first thing to do is get all the information you can about adhesions so that you know all you can about it. If you are still having pain with your meds, talk to your Dr about increasing the dose. I wish you all the best. robin M

At Thu, 6 Mar 2003, Meg Rose wrote: >
>I thought I was alone..crazy..I could list so many and I stumbled onto
>this and cannot believe my eyes.I have noone to talk to about my issues
>because noone really gets it.I can see I am not alone.What a relief.
>Maybe someone out in this big cyber-world can tell me I am on the right
>track.
>I need to share my history so you will know what has happened to me,as
>well as it may help to just get some of this off of my shoulders (as I
>am carrying alot)
>I will try to be brief so I don't tire you out.
>I NEED to know I will be o.k.
>In 1993 I came down with a pain under my belly button in March on a
>blustery Tuesday a.m.I took mylanta with no relief.I was not miserable
>but as time went on I was not having fun.I waited until Thurs.to go to
>an urgent care clinic as we had just relocated and did not have a dr.
>yet.The dr. gave me a mixture to drink and thought it may be an
>ulcer.If it wasn't better by the a.m. I was to call.It was not better
>it was worse so I called and was told to go to the e.r.It was 8a.m.and I
>went to the nearest e.r.My husband drove me in.At this point I could not
>stand or walk.I threw-up in the parking lotwhich was unusual because I
>just don't puke often.The e.r.did some tests (blood...white count a
>liitle highl,urine...fine etc.)Nothing really.The doc gave me some pain
>meds and cramping meds and said it was probably the flu and sent me
>home.By noon I was in tears.My husband picked me up and carried me to
>the car and back we went to the e.r.This time the doc did no more
>tests..only an x-ray.He saw a big fluffy white patch on my right and
>called it a "paucity"of air.He gave me more pain meds and anti-puke meds
>and instructed my husband to stop on the way home and get some milk of
>magnesium and a enema for me.I got home and took the m.o.m.and went to
>the toilet and did the enama.I thought someone had shot me.I landed on
>the floor and rolled around on the ground.My husband works nights and
>had been awake for 25 hours so he dosed and was not aware of me rolling
>around.At 8p.m.I went back to the e.r.This time they did an ultra-sound
>and found a cyst on my "left" ovary.They prepped me for surgery for
>1p.m.At 1p.m. they told me I was bumped till 5p.m.They tried to keep me
>comfortable with morphine.The surgeon did a little hole to go in and
>found my appendix had ruptured.4 "s of my bowel had perforated.I was
>full of feces.She removed part of my bowels and gallbladder.the surgeon
>told my mom and sis that in her 20 years I was the worst she had ever
>seen.
>I stayed for 6 days and sent home.2 weeks later I had severe pain again
>and they found a pocket infection the had to drain trans-vaginally.That
>hurt like hell.2 cups of infection came out.And then 2 weeks later I was
>in severe pain again and the tried to go in my belly-button to remove
>that cyst on my ovary and they couldn't get in very easily.The surgeon
>told me it is as if someone opened my abdomen and poured honey in
>it.Everything was stuck together.I was 99% probability of being
>sterile.I do have 2 boys and was done having kids but still....
>I have had bowel trouble and mostly period problems but for the most
>part I came out of it pretty good.The period problems became worse in
>2000.Very painful and never-ending.So I had a complete hysterectomy
>5/2002.The OB said I was a mess.My ovaries crumbled.Every one of my
>organs was adhered to other organs.He had to chisel my uterus and tubes
>away so he could remove them.He put that sepra film in to prevent
>further adhesions.In June I came down with really bad buttox pain.My OB
>said it is common to have it after.My family doc treated it as back
>pain.I won't go into all those details butI have been in and out of the
>e.r.I have had injections in my back.CT...MRI...ETC.I kept saying it
>sure was coincedental this started after surgery.I have been on percocet
>for pain since June.It helps me so I can work and function.They tried so
>many anti-depressants.muscle relaxants,NSAIDS,etc.with no relief.I was
>sent to a pain specialist finally to get help as the percocet wasn't
>working as well.Of all the dr.'s the pain doc is the one who said it was
>not my back.He heard me.He listened,spent 2 hours talking to me and then
>talked to all the other drs.He said it is in my pelvic area.Deep in my
>butt to the right.He sent me to another OB who I saw yesterday who said
>he was glad he wasn't the one to do my hysterectomy because it was so
>difficult(he had the path in front of him).He told me it sounded like
>ADHESIONS!!!!!He said they can attach anywhere and strangle your nerve
>endings.They can attach to your spine.They wrap around anything.Is this
>true??He told me surgery in my case is not an option as it can create
>more.He said it is going to be tough to try and find the exact area.He
>said they may not.WHAT...DID I HEAR YOU RIGHT???
>Can this go on forever???Can they really not find the source of this
>unbearable pain???This is ruining my life.It is putting my job in
>jeopardy.My familt is suffering along with me.I am now on 75 mg.
>duagesic patch which helps but I still need my percocet every 4 hours.I
>am depressed yet awake all night from the pain.I have meds that help for
>3-4 nights and then stop (Trazadone)helping me sleep.How many more days
>do I have to take all this med?Please tell me this will get better.I am
>not a very good patient.I am so tired of drs.,meds and being a guinea
>pig.I am scared that my meds will stop helping completely.How do you
>live with chronic pain??How do you take a vacation from yourself??How do
>you want to keep living??HELP PLEASE.
>Thankyou in advance


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