I thought I was alone..crazy..I could list so many and I stumbled onto
this and cannot believe my eyes.I have noone to talk to about my issues
because noone really gets it.I can see I am not alone.What a relief.
Maybe someone out in this big cyber-world can tell me I am on the right
track.
I need to share my history so you will know what has happened to me,as
well as it may help to just get some of this off of my shoulders (as I
am carrying alot)
I will try to be brief so I don't tire you out.
I NEED to know I will be o.k.
In 1993 I came down with a pain under my belly button in March on a
blustery Tuesday a.m.I took mylanta with no relief.I was not miserable
but as time went on I was not having fun.I waited until Thurs.to go to
an urgent care clinic as we had just relocated and did not have a dr.
yet.The dr. gave me a mixture to drink and thought it may be an
ulcer.If it wasn't better by the a.m. I was to call.It was not better
it was worse so I called and was told to go to the e.r.It was 8a.m.and I
went to the nearest e.r.My husband drove me in.At this point I could not
stand or walk.I threw-up in the parking lotwhich was unusual because I
just don't puke often.The e.r.did some tests (blood...white count a
liitle highl,urine...fine etc.)Nothing really.The doc gave me some pain
meds and cramping meds and said it was probably the flu and sent me
home.By noon I was in tears.My husband picked me up and carried me to
the car and back we went to the e.r.This time the doc did no more
tests..only an x-ray.He saw a big fluffy white patch on my right and
called it a "paucity"of air.He gave me more pain meds and anti-puke meds
and instructed my husband to stop on the way home and get some milk of
magnesium and a enema for me.I got home and took the m.o.m.and went to
the toilet and did the enama.I thought someone had shot me.I landed on
the floor and rolled around on the ground.My husband works nights and
had been awake for 25 hours so he dosed and was not aware of me rolling
around.At 8p.m.I went back to the e.r.This time they did an ultra-sound
and found a cyst on my "left" ovary.They prepped me for surgery for
1p.m.At 1p.m. they told me I was bumped till 5p.m.They tried to keep me
comfortable with morphine.The surgeon did a little hole to go in and
found my appendix had ruptured.4 "s of my bowel had perforated.I was
full of feces.She removed part of my bowels and gallbladder.the surgeon
told my mom and sis that in her 20 years I was the worst she had ever
seen.
I stayed for 6 days and sent home.2 weeks later I had severe pain again
and they found a pocket infection the had to drain trans-vaginally.That
hurt like hell.2 cups of infection came out.And then 2 weeks later I was
in severe pain again and the tried to go in my belly-button to remove
that cyst on my ovary and they couldn't get in very easily.The surgeon
told me it is as if someone opened my abdomen and poured honey in
it.Everything was stuck together.I was 99% probability of being
sterile.I do have 2 boys and was done having kids but still....
I have had bowel trouble and mostly period problems but for the most
part I came out of it pretty good.The period problems became worse in
2000.Very painful and never-ending.So I had a complete hysterectomy
5/2002.The OB said I was a mess.My ovaries crumbled.Every one of my
organs was adhered to other organs.He had to chisel my uterus and tubes
away so he could remove them.He put that sepra film in to prevent
further adhesions.In June I came down with really bad buttox pain.My OB
said it is common to have it after.My family doc treated it as back
pain.I won't go into all those details butI have been in and out of the
e.r.I have had injections in my back.CT...MRI...ETC.I kept saying it
sure was coincedental this started after surgery.I have been on percocet
for pain since June.It helps me so I can work and function.They tried so
many anti-depressants.muscle relaxants,NSAIDS,etc.with no relief.I was
sent to a pain specialist finally to get help as the percocet wasn't
working as well.Of all the dr.'s the pain doc is the one who said it was
not my back.He heard me.He listened,spent 2 hours talking to me and then
talked to all the other drs.He said it is in my pelvic area.Deep in my
butt to the right.He sent me to another OB who I saw yesterday who said
he was glad he wasn't the one to do my hysterectomy because it was so
difficult(he had the path in front of him).He told me it sounded like
ADHESIONS!!!!!He said they can attach anywhere and strangle your nerve
endings.They can attach to your spine.They wrap around anything.Is this
true??He told me surgery in my case is not an option as it can create
more.He said it is going to be tough to try and find the exact area.He
said they may not.WHAT...DID I HEAR YOU RIGHT???
Can this go on forever???Can they really not find the source of this
unbearable pain???This is ruining my life.It is putting my job in
jeopardy.My familt is suffering along with me.I am now on 75 mg.
duagesic patch which helps but I still need my percocet every 4 hours.I
am depressed yet awake all night from the pain.I have meds that help for
3-4 nights and then stop (Trazadone)helping me sleep.How many more days
do I have to take all this med?Please tell me this will get better.I am
not a very good patient.I am so tired of drs.,meds and being a guinea
pig.I am scared that my meds will stop helping completely.How do you
live with chronic pain??How do you take a vacation from yourself??How do
you want to keep living??HELP PLEASE.
Thankyou in advance