Re: Who is going to Germany for surgery Jan 16,17
From: kann (stew@cowtown.net)
Wed Jan 8 21:46:44 2003
Dear Dr. Moore,
Very exciting to see a physician that is interested in the patient,
procedures, &
products. Also amazing that you would ask women that are suffering terribly
to
answer some of your questions. I commend you for that. There are TOO many
"know-it-all" doctors out there that immediately tell women they need an
antidepressant.
Please spread the word to other physicians that women are SICK & TIRED of
doctors that "poo-poo" the patient that has made yet another very difficult
trek to
only find another dead end doctor. I personally have searched for THIRTEEN
years for help for my daughter, dragging her to doctor after doctor, and to
every type of "______ologist"
(you fill in the blank ---we've been to them all). We have flown to other
states and driven
thousands of miles and NEVER received help. Last year I begged God to show
ME
what was wrong with her and day in and day out I searched the internet. God
answered my prayer and within one day I had her an appointment with a
specialist.
I told him what I thought was wrong. To my surprise, he fully agreed and
apologized
to us for the years of mistreatment by medical "professionals". He scheduled
her for
surgery the next week. He came from surgery with photos of adhesions all
through her
pelvic area. He is sure the fallopian tubes are destroyed. I have photos and
a video if
you would like to see them. He was not expertise enough to remove all the
adhesions
from her intestine, rectal area, liver, etc. She had a second surgery in
California.
While in California, I learned about adhesions through the internet and much
to my
grief found out our battle may not be over. My daughter is better, but still
has low
pain, fatigue, headaches, etc. We are headed to a hormone specialist next
week.
Also, my daughter had NEVER had any surgeries.......thus her adhesions were
not
from surgery. She became terribly ill at the age of 13 and we were told it
was Crohn's
disease. After researching Crohn's, I came to the conclusion she had been
misdiagnosed.
I went through hell with doctors for questioning them. As she became older
(an adult--but
a very sick adult), I became the doctors dreaded "patient that brings her
mom". I was there
for my daughter and I will always be there for her. Many times she was too
ill to go alone
and too exhausted to explain her story one more time. She depended on me to
be her
voice, her help, her angel. She began telling her friends, "my mom is my
angel that God
has given me". That may not mean anything to a doctor, but to the suffering
patient, they
need an angel. Many women on this web site have no one to help them. They've
lost friends,
lovers, & husbands because of this horrid disease. And then they lose all
hope in receiving
their life back. Very few doctors offer hope or take the time to sort out
the medical history.
As a matter of fact, we have learned that the medical history serves as
ammunition against
the patient. If you have visited too many doctors, you are labeled a nut. I
also learned that
if blood tests show "normal", you are immediately labeled a hypochondriac.
In our situation
my daughter became the "hypochondriac with the enabling mother". May God
show mercy
on the doctors (plural) that belittled my daughter's condition. My daughter
has hope because
her family would not allow her to quit. She did want to die at the age of 14
Many days she was
in screaming agony. Not one doctor every mentioned a lap procedure--and we
did not know
that x rays, etc. do not reveal all that is going on. We were her parents,
not doctors. The patient
is at your mercy. No parent should have to become a medical detective. I
believe each doctor should "weigh" the evidence (medical history), but not
mark that patient after reading it. After all, if they have made their way
to your office, they are STILL looking for that one doctor that will have
compassion and make an effort to LISTEN.
In closing, let me say again, I commend you for posting. For your questions
and cautions. At least you do seem to be the exception to the rule. My
prayer is that God will enlighten you and you will become a physician that
women will clamor to see because of your knowledge, ability, compassion and
concern.
Karen
-------Original Message-------
From: adhesions@adhesions.org
Date: Wednesday, January 08, 2003 10:22:23 AM
To: Multiple recipients of list ADHESIONS
Subject: Re: Who is going to Germany for surgery Jan 16,17
At Wed, 8 Jan 2003, K. Murray wrote:
I am a physician who is quite puzzled by this website. I have much
experience with adhesions and I see them quite often during surgery. I
was taught (as were most physicians) that adhesions are caused by
surgery and therefore doing surgery to correct them was circular logic
(doing surgery to correct something caused by surgery could cause the
same problem). Now obviously there are less invasive surgical
techniques (eg laparoscopy) to try and prevent adhesions, but there are
no guarantees they won't reform. In addition, doing surgery on someone
with adhesions is more difficult (organs can be 'adhesed' together
and/or in the wrong place making injury to them more likely). I would
like more information about this 'gel' the German doctor is using. There
have been many attempts by pharmaceutical companies to produce a
substance that prevents adhesions. The name "Intercede" comes to mind
as one that was tried. Unfortunately, none have been shown in medical
trials to work. Believe me, it would be a medical miracle if someone
could prevent adhesion formation. But as far as I know, no one can. I
hate telling someone they have terrible pain that I can't do anything
about, but that is the facts as I know them.
--
In closing, I don't write this to dash anybody's hopes or cast doubt on
any physician's credentials. But beware false prophets- since the days
of snake oil salesmen there have been all kinds of 'cures' for illnesses
that later didn't pan out. I don't want to see anyone spend a lot of
money on things that don't work and could potentially be harmful (such
as unneccessary surgery).
-Dr. Moore, OB/GYN
>
>Mary Lou,
>I went to Germany in December and had surgery. I walked alot after surgery
>post-op. I even walked back to the flat from the hospital after surgery.
>I felt worse after sitting on the plane forever coming home. It set me back
>some.So maybe it will be a good idea for you to walk around alot.
>Kelly
>-------Original Message-------
>
>From: adhesions@adhesions.org
>Date: Tuesday, January 07, 2003 11:39:07 AM
>To: Multiple recipients of list ADHESIONS
>Subject: Who is going to Germany for surgery Jan 16,17
>
>Hello folks,
>This is from me, Mary Lou, also known as "desperate". As some of you
>know, I have made he decision to go to Germany as soon as possible to
>have surgery by Dr. K. Someone sent me a message stating that three
>others are going over there for surgery on Jan 16, and Jan 17. Does
>anyone know who these three are and how I can get in touch with them? I
>am hoping to have my time there overlap with their time there, as I do
>not have a companion to stay with me in the apartment. I am having a
>plastic surgery, not a laporoscopy, in which they will undue my scar
>pull back as much skin as necessary, and remove the adhesions, spray gel
>the surfaces, and they resuture. I hope I will have time the day before
>surgery to go to the grocery and stock up the apt with food, because I
>do not think I will feel like venturing out for several days post-op.
>Three people have gone so far and all are now adhesion-free. As more
>and more go, eventually there will be a caravan of adhesion sufferers
>making the trip. Yes, It is expensive, but when I think of day after
>day of this continuous pain for the rest of my life, the thought
>overwhelms me. thanks. Mary Lou
>
>--
>mary lou
>
.