Re: adhesions suck and I am fed up!!!
From: jason h rachal (arshal@juno.com)
Wed Dec 18 21:19:31 2002
TONYA,
HI MY NAME IS NICKY AND I HAVE BEEN DEALING WITH ADHESIONS FOR EIGHT
YEARS. I HAVE HAD TWO LAPR. SEVERE ADHESIONS AND THIS LAST ONE MY LEFT
OVARY WAS TWISTED AROUND MY BOWEL AND EVERYTHING ELSE ATTACHED. 6WKS
LATER I HAD A TOTAL HYST. I AM ONLY 30. MY PERIODS WERE TREMENDOUS. AND
WHEN THE DR. WENT IN AND DID THE HYST. THE ADHESIONS WERE BACK IN FULL
FORCE. HELEN SENT ME ALOT OF GOOD MATERIAL ALSO. I AM ONLY 4WKS POST OP.
BUT I WOULD LIKE YOU LADIES TO KNOW THAT EVEN THOUGH THIS SURGERY AS WELL
AS OTHER CAUSES MORE ADHESIONS THAT I FOUND OUT JUST RECENTLY THAT IF I
WOULD NOT HAVE HAD IT DONE(THE HYST) THE ADHESIONS WOULD HAVE EVENTUALLY
CAUSED SO MUCH DAMAGE TO MY FEMALE ORGANS AND THEY WOULD HAVE STOPPED
WORKING AND I WOULD HAVE HAD TO HAVE THE HYST. ANYWAY. THIS IS NOT TO
SCARE OR UPSET ANYONE JUST A LITTLE ADVICE TO THINK ABOUT.......
On Wed, 18 Dec 2002 21:18:33 -0600 "Tonya Valpey"
<rainchild_35@hotmail.com> writes:
> Thank you, Cathy, for the kind words. I am re-thinking the
> hysterectomy. I
> have talked to 3 different surgeons and they did tell me that taking
> out my
> uterus would cause even more adhesions and I would have even more
> pain, if
> that's possible. But since I'm having chronic pain from my periods
> and
> bleeding all the time, it was up to me to pick the lesser of the two
> evils.
> If I do, I'm damned, and if I don't, I'm damned!! I am besides
> myself. I
> can't wait for the spray-gel to come to the US ....maybe there is
> hope for
> all of us!!!!! I pray there is.
>
> I have read many of your stories and from other people and I tell
> myself
> that I have so much to be thankful for. Some of the women on this
> site are
> in way more pain than I, and have suffered many years longer than my
> 4
> years. I honor you women out there that are sharing with us your
> life
> experiences because without you all, I would still be thinking that
> I was
> the only one. We must educate others and bring these experiences to
> our
> doctors and tell them that this is real and not a figment of our
> imagination. The doctors need to see us unite and meke a stand for
> our
> rights to be treated with dignity and respect and not told that it's
> "just
> in our heads". If we added up all the money that was spend in us
> just going
> from doctor to doctor to find a diagnosis ....that would be in the
> millions,
> I'm sure, and that money should have been spent on research in every
>
> country. We need to fight to be heard and possibly a cure found.
>
> Thank you for all your advise and moral support. Some days I just
> feel like
> giving up and I'm only 36. I am engaged to be married in June and I
> found a
> man that loves my body just the way it is....adhesions and all. He
>
> understands my pain and suffering and is so supportive also. He is
> so glad
> that I've found this site and is grateful for all of you too.
>
> I feel very uplifted today. Today has been almost a pain-free day
> and I
> feel very thankful.
>
> May your days be pain-free and your holidays blessed with lots of
> love and
> happiness.
>
> Tonya
>
> >From: anonymous@medispecialty.com (cathy:-)
> >Reply-To: adhesions@adhesions.org
> >To: Multiple recipients of list ADHESIONS
> ><adhesions@mail.medispecialty.com>
> >Subject: Re: adhesions suck and I am fed up!!!
> >Date: Tue, 17 Dec 2002 21:30:08 -0600
> >
> >Boy, we hear ya, sister! The first thing that I would do is go back
> to
> >last week's postings and look for two from Helen Dynda. She put
> in
> >links to a couple of sites that have all of the various
> alternatives to
> >hysterectomies for the things that hysterectomies are usually used
> for.
> >
> >I would focus very hard on making sure that every other possible
> >treatment is exhausted before consenting to a hysterectomy. Having
> one
> >is going to make your adhesions worse. The ONLY hope you have of
> that
> >not happening (and even this is not a sure thing) is to delay the
> >surgery until spray gel is approved in the US (expected in
> spring-summer
> >2003) and you can get an expert surgeon to do the surgery and lay
> down
> >the spray gel.
> >
> >Every time you have a thought something like, "I can't imagine
> anything
> >worse than spending the rest of my life using narcotics to
> function,"
> >tell yourself that you are suffering from a lack of imagination!
> There
> >are surely worse things, as any one of dozens of people here can
> tell
> >you. Because they don't have to IMAGINE worse things, they LIVE
> worse
> >things. Much worse things.
> >
> >At Tue, 17 Dec 2002, Tonya Fleming wrote:
> > >
> > >I am new to this forum. Until yesterday, I thought I was the
> only one
> > >that suffered from adhesions. I live in Idaho and the doctors
> here are
> > >"small time" so they seem to not know anything about them. I
> have seen
> > >many doctors and they all seem to think that the pain is either
> in my
> > >head or I'm "drug-seeking". I'm tired of not being taken serious
> and
> > >not being diagnosed correctly. I've finally moved to the biggest
> city
> > >in Idaho and finally I'm gaining some ground on them believing me
> and
> > >running tests. But now I've been referred to a chronic pain
> center and
> > >told that there is nothing that can be done for me. I'm scared
> because
> > >I need a partial hysterectomy and am scared to death that the
> surgery
> > >will screw me up even more. I've already had 4 surgeries to
> remove the
> > >adhesions to my liver, bowels and ovaries. Now, one more surgery
> could
> > >put me even in more chronic pain. Has anyone out there got any
> > >suggestions on this? I am desperate to find help. I appreciate
> this
> > >site so much because until yesterday, I suffered in chronic pain
> alone.
> > >I don't know another sole in this world that has my problems.
> Thank God
> > >for you all.
> > >
> > >Merry Christmas to all
> > >Tonya
> > >
> > >--
> > >Tonya Fleming
> > >
> >
> >--
> >cathy :-)
> >
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>
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>
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