I'll hope and pray something can be done for you...all you need is another disease to bring you down.
God's blessings, kcmo rose
At Sat, 23 Nov 2002, Annie Hawksley wrote:
>
>Hello to all at IAS!
>
>It has been quite some time since I posted here on the IAS board.
>Thankyou to all who responded to my call for assistance in my last post
>but have found it impossible to keep up & try posting due to the nature
>of my complicated life! I appreciated all your messages of support &
>assistance.
>
>Since posting I have undergone numerous tests to determine the cause of
>my enlarged common bile duct.I had ultra sound, CT scan, MRI, & many,
>many expensive blood tests.
>
>The end result is that I have a diease called Primary sclerosing
>cholangitis, which basically is the area both inside & outside the bile
>ducts become enlarged due to infection & scar tissue forms - its is
>usually related to inflammatory bowel diease, crohon's diease, or
>ulcerative colitis & rarely but possible osteoporis ( which I have
>also!)It also is related to the auto immune system. The progression of
>this diease effects the liver to the stage where liver failure is a
>significant possibility.There is no treatment for PSC, except a
>medication that may slow the the process. For more info go to
>http://www.liver.org & it will give you all the necessary info.
>
>Not only have I suffered from adhesions from the age of 14 years - Iam
>now 52- I now have to come to terms with this horrible diease. I am
>under a good doctor here in Western Australia, a Professor who heads the
>liver transplnt team here in WA!
>
>How do I feel? Simply put - numb & devasted.
>
>So, my dear friends out there, please be patient. I am unable to answer
>everyones emails personally as I spend a lot of time travelling to
>doctors, some 2 hours drive away & we all know so well how travelling
>affects adhesions even when just sitting in the car just getting from
>"point A to point B!
>
>I also, like so many adhesion sufferers am unable to lead a normal life
>& have to spend many hours each day trying to get relief from the pain I
>suffer so badly.
>
>The next step in this pathway is a liver biospy, which will be done in
>the next couple of weeks.It will determine the extent of the liver
>damage I alredy have! They will then decide whether I am a candiate for
>the medication given that slows the process of the diease. They are
>unsure whether this medication does any good or not! What a great
>Christmas present, eh!
>
>I will endeavour to keep you up dated on my progress or I may ask my
>dear sweet friend Jo Eslick to let you know.
>
>Thankyou all for your past support. I do ask for your prayers over the
>next few weeks.
>
>Should you wish to contact me privately, my email address is...
>monkopen@wn.com.au
>
>Love & blessings to all & I hope everyone is able to cope with their
>pain & suffering.
>
>Annie
>
>--
>Annie H
>