Re: Lurker here - First Post & Need Input on Belly Pain

From: Shawna French (frenchysha@yahoo.com)
Thu Nov 14 14:17:22 2002


At Thu, 14 Nov 2002, Nancy wrote: >
>Hi all, I've been scaning this board from time to time since I had
>complications from a hyst in July 02. I had a cuff cellulitis that was
>not treated until 6 weeks post op. I kept thinking this pain was
>related to the infection and when it is finally cleared up, that this
>pain would be gone - no such luck. I had an adhesiolysis in October 02.
>Op report read 'large area of omental adhesions on the midline...taken
>down sharply... vessels controlled with cautery....' Surgeon said they
>had my bowels kinked. I thought OK, the adhesions are gone, this pain
>will be gone. I had been having some very suspicious pain, and now the
>pain is almost back to the same level as it was before the lysis. Before
>the lysis, I was also having to keep my legs up on pillows 'because I
>couldn't stand for the the back of my legs to touch anything. I don't
>have to do that anymore. I am still able to eat solid foods since the
>lysis for which I am very thankful. I have not gained much weight back,
>but I feel stronger. It just seems the pain is creeping back.
>
>I have a real tough time with clothes that do not hurt my belly. Simply
>bigger clothes do not provide enough relief. The most comfortable ones
>I have found were 4 sizes too big, and I still had to take the elastic
>out of the front of them. They have a drawstring so I tie them to my
>bra. Works out pretty good. Anything that touches the belly causes
>pain for hours later. Is this common?
>Hello, i think you have just like the rest of us adhesions again. Yes you are correct the adhesion pain is causing the anxiety, severe bloating can cause the distention you are talking about most definatly hon. I also cannot wear anything with alastic and also kinking of the bowels is very normal as the bowel weakens as adhesions are removed. This also might be why the area you talk about is so sensitive and painful the nerves have been damaged it is called neuropothy. Now do not take that kind of treatment from your dr as the belief of adhesion pain is a definate contriversial issue, drs are taught and do not like to change though process that if they cannot see or feel pain it does not exsist. Arm yourself with printed out research articles from archives of this site and take them to your dr whether he likes it or not. If you are deciding to stay with this man. Drs cop out to simplizing adhesion affecting the intestines and say it is IBS truely it sound like looks like but is not IBS. All the problems you state are secondary to adhesions hon . It is not in your head for sure.Because of the lack of compassion from your Dr. you need to evaluate if you even want the struggle to make your point for your health. I am not a medical professional but just have endured the trials of adhesions forever it seems. If I can be of any more help and i hope i did help you can contact me personally Fondly Shawna F
>I'm considering going to Germany - I mentioned this to my GP. He
>absolutely thinks I'm nuts. Thinks I've been on the 'net too much and
>my anxiety is causing the pain. I thought more like... the pain is
>causing the anxiety! I guess he thinks I like wearing maternity clothes.
>He is going to start treating me for IBS. Doesn't IBS include bowel
>cramps and diarrhea? I have none of that. To sum it up: I think my Drs
>are through with me.
>
>I still have a recessed spot on my belly where the adhesions were based.
>Feels like the skin is real thin over that spot.... kinda like there's
>nothing underneath the thin layer of skin. Is it common for clothes
>that touch your belly to cause this much pain? If this is not adhesions,
>any idea what else it could be?
>
>Thanks in Advance,
>Nancy

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