To Lynn Re: Where do I go from here?

From: Eileen Rivera (satintigerpr@yahoo.com)
Tue Nov 12 07:26:10 2002


Dear Lynn,

I'm sorry you're also in this condition. To be honest with you I haven't gone to see a Pain Management doctor so far because I'm not working since my last surgery in February and I'm not receving any income, only goverment food coupons. I'm in a very bad financial situation. The little money I receive sometimes by friends and relatives I use it to see the surgeon thatdid my last surgery. I do have a medical plan that my job is paying for one more year which I thank God for that. Please give me more information on Germany, UK and Australia...is there any hope there? I can not have spary gel placed as my doctor told me due I might get an infection but the doctor did placed an adhesion barrier (Seprafilm) on my intestines,feel it did not work because I'm back like before this lasr surgery. This is so frustating! I'm using Ultram and Percocet for the pain. Lynn, I feel doctors really don't know how bad this really is, how bad is the pain. I will be also praying for you. God bless. Eileen

At Mon, 11 Nov 2002, Lynn Creacy wrote: >
>At Mon, 11 Nov 2002, Eileen wrote:
>>Eileen,
>Have you gone to see a pain management doctor yet? I am so sorry to hear
>that you have gone through so many surgeries. No one should have to go
>through all of this pain and also have to deal with the most insensitive
>doctors in the world. Is there anyway you can go to UK,Germany or
>Australia for your surgery and spraygel? That is what I am planning. I
>am seeing a pain clinic and when I can I an going to Germany. My
>prayers are with you.
>
>Lynn
>
>>Hello and God bless all adhesions sufferers and family.
>>Please advise, need support to carry on with this misery. I have posted
>>my story in the adhesion quilt over a year ago, also posted a message a
>>few weeks ago, had no answer. Again, I have terrible pain inside my
>>belly button and abdominal area. I'm nauseus, can't eat solid foods,
>>hardly can't go to the bathroom etc. This is not the first time this
>>happens. I have had ten surgeries and the last one was last February
>>2002. I have been having surgeries since 1991, first caused by severe
>>endometriosis.
>>
>>This last surgeon placed Seprafilm over my intestines and he
>>reconstructed my belly button (had also an hernia inside the belly
>>button which I think that was the caused of the discharging liquid and
>>blood and bad smell from the belly button). He also told me I"m "full"
>>with adhesions in the abdominal area. He only removed the adhesions
>>that were estrangling the intestines and "belly button". Every ten to
>>twelve months after surgery adhesions estrangles my intestines and
>>another organ all over again. It' a vicios cycle. I can't move
>>normally, strech, sleep normally because of the terrible pain it causes.
>>I'm all "tied" up inside.
>>
>>Doctors admits me into the hospital and places tubes inside my nose down
>>to my stomach.... bowel obstruction. This last surgery the surgeon
>>told me "you cannot have no more surgeries" !!! Now, here I am again
>>with the same problem, where do I go from here? I made an appointment
>>for tomorrow to see this last surgeon once again. He also told me he
>>did not place a "spray gel" because my abdominal area is so delicate he
>>thinks I could have gotten an infection. I think when he see me he's
>>going to run away. Every surgeon, doctor I see tells me the same thing.
>>No remedy! Every time I have surgery it's a life or death situation due
>>to that my organs are estrangled and the doctors tells me "you have to
>>have surgery or you'll die, you can not hold much longer.
>>
>>I'm not working since last January 2002, I was turn down from Social
>>Security Benefits and hired a lawyer this time. Love to all. Eileen
>>(San Juan, Puerto Rico)
>
>--
>A new friend
>


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