Where do I go from here?

From: Eileen (satintigerpr@yahoo.com)
Mon Nov 11 10:14:26 2002


Hello and God bless all adhesions sufferers and family. Please advise, need support to carry on with this misery. I have posted my story in the adhesion quilt over a year ago, also posted a message a few weeks ago, had no answer. Again, I have terrible pain inside my belly button and abdominal area. I'm nauseus, can't eat solid foods, hardly can't go to the bathroom etc. This is not the first time this happens. I have had ten surgeries and the last one was last February 2002. I have been having surgeries since 1991, first caused by severe endometriosis.

This last surgeon placed Seprafilm over my intestines and he reconstructed my belly button (had also an hernia inside the belly button which I think that was the caused of the discharging liquid and blood and bad smell from the belly button). He also told me I"m "full" with adhesions in the abdominal area. He only removed the adhesions that were estrangling the intestines and "belly button". Every ten to twelve months after surgery adhesions estrangles my intestines and another organ all over again. It' a vicios cycle. I can't move normally, strech, sleep normally because of the terrible pain it causes. I'm all "tied" up inside.

Doctors admits me into the hospital and places tubes inside my nose down to my stomach.... bowel obstruction. This last surgery the surgeon told me "you cannot have no more surgeries" !!! Now, here I am again with the same problem, where do I go from here? I made an appointment for tomorrow to see this last surgeon once again. He also told me he did not place a "spray gel" because my abdominal area is so delicate he thinks I could have gotten an infection. I think when he see me he's going to run away. Every surgeon, doctor I see tells me the same thing. No remedy! Every time I have surgery it's a life or death situation due to that my organs are estrangled and the doctors tells me "you have to have surgery or you'll die, you can not hold much longer.

I'm not working since last January 2002, I was turn down from Social Security Benefits and hired a lawyer this time. Love to all. Eileen (San Juan, Puerto Rico)


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