Denise,
I have been on this site for almost two years and I did go to one of the drs
that every one on this site said was the only one to go to and I was in
pain right away again. (I never was pain-free)
I know in my heart that there are other drs. out there that can help us.
There has to be other ones besides what are posted on this site. I know I
will probably get alot of flack for this but I am getting sicker by the day
and I am doing my own searching.
This site was a god-send for me when I found it because it explained alot of
what was happening inside of me and I have learned a lof of information
especially from Helen D. and have met alot of good friends that I write to
but I think there ARE other doctors out there that can help.
I have been corresponding with drs at major teaching hospitals that do
adhesion surgeries and have corresponded with one patient from one of them
that is doing well. I do have a appt. accross the U.S. in a week. I think we
all need to do a little more researching.
Kel
-------Original Message-------
From: adhesions@adhesions.org
Date: Sunday, September 15, 2002 14:02:07
To: Multiple recipients of list ADHESIONS
Subject: Re: Thanks For The No Help Responses!!!!
At Sun, 15 Sep 2002, Msvirgo9459@aol.com wrote:
>
>I just want to let you know that I do read emails not every day buT I do
and
>when there is an annonymous name I will not respond cause I like to know
who
>I am talking to. And also we are not medical professionals only people who
>suffer like you do..If you are not satisfied with the info as you come on
to
>the site and reading the stories on the quilt you may find yourself in a-- >termoil of uneventful surgeries because there aren't many docs who can
offer
>you any more than what you have here.,There is no real answer to this
problem
>it isn't like magic. We all still have been through many tests and
surgeries
>to find ourselves right back in this vicious pain. This is not a know it
all
>site. We suffer in pain and have to deal with it until maybe someday
someone
>will find the cure but for now there isn't any in the US atleast.If you
think
>you need some confirmation in what we tell you contact Dr WIseman and see
>what answers you get from him and I also want to tell youthat it may take
>some time for him to answer you as well because he is busy trying to
conquer
>some help for us too.
>Lillian
Let me assure you,, I didn't come to this site thinking to find the cure
all !!! Believe me,, I already know the odds and that there is no real
cure as of yet!!! But what I didn't expect to find was people that want
to place judgements on others for wanting to help or aid in the help to
finding a cure for this!! I don't want to "just sit by and wait",,, if
there is some way or some person or Doctor out there that needs the
actual real thing to work with,,, I am willing to supply them with
that!! I don't think that entitles me to being talked to or sent an
e-mail that is basically telling me I'm stupid for wanting to
try????????? And if I could afford to go to Germany or Austraila,,,
don't you think I would of been there by now???? Maybe more like 3 years
ago when this started?? Since I also know they do the brush-on in Europe
and have been for 5 years now with a very high success rate?????? Helo
out there,,,,, I can't afford to do it,,, so if there is one of these
Doctors out there that needs the patient,,,, "Hey Here I am" that's all
I'm saying here!!!!! That's all I was asking for,,, just was asking if
anyone knew of such a place or a Doctor!!! What I didn't ask for ,,, was
to be condemed for wanting to at least try!!!
Thank you
P.S. My first posting was not done as annonymous it was posted Sept 12.
titled "Information On Research Testing/ Volunteering".And my name is
right next to it!
Thank you again,
Denise
.