Re: Thanks For The No Help Responses!!!!

From: Denise (dam_isme@bellsouth.net)
Sun Sep 15 13:59:59 2002


At Sun, 15 Sep 2002, Msvirgo9459@aol.com wrote: >
>I just want to let you know that I do read emails not every day buT I do and
>when there is an annonymous name I will not respond cause I like to know who
>I am talking to. And also we are not medical professionals only people who
>suffer like you do..If you are not satisfied with the info as you come on to
>the site and reading the stories on the quilt you may find yourself in a
>termoil of uneventful surgeries because there aren't many docs who can offer
>you any more than what you have here.,There is no real answer to this problem
>it isn't like magic. We all still have been through many tests and surgeries
>to find ourselves right back in this vicious pain. This is not a know it all
>site. We suffer in pain and have to deal with it until maybe someday someone
>will find the cure but for now there isn't any in the US atleast.If you think
>you need some confirmation in what we tell you contact Dr WIseman and see
>what answers you get from him and I also want to tell youthat it may take
>some time for him to answer you as well because he is busy trying to conquer
>some help for us too.
>Lillian

Let me assure you,, I didn't come to this site thinking to find the cure all !!! Believe me,, I already know the odds and that there is no real cure as of yet!!! But what I didn't expect to find was people that want to place judgements on others for wanting to help or aid in the help to finding a cure for this!! I don't want to "just sit by and wait",,, if there is some way or some person or Doctor out there that needs the actual real thing to work with,,, I am willing to supply them with that!! I don't think that entitles me to being talked to or sent an e-mail that is basically telling me I'm stupid for wanting to try????????? And if I could afford to go to Germany or Austraila,,, don't you think I would of been there by now???? Maybe more like 3 years ago when this started?? Since I also know they do the brush-on in Europe and have been for 5 years now with a very high success rate?????? Helo out there,,,,, I can't afford to do it,,, so if there is one of these Doctors out there that needs the patient,,,, "Hey Here I am" that's all I'm saying here!!!!! That's all I was asking for,,, just was asking if anyone knew of such a place or a Doctor!!! What I didn't ask for ,,, was to be condemed for wanting to at least try!!! Thank you P.S. My first posting was not done as annonymous it was posted Sept 12. titled "Information On Research Testing/ Volunteering".And my name is right next to it! Thank you again, Denise


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