Jo,
Thanks for the instructions. I will print them out &
try it again, soon.
Take Care,
Rita
--- Jo Eslick <joanne@bombobeach.com> wrote:
> Hi Rita, > > Thank you for your kind words :-) It is always nice > to know that I am > able to help someone, even just a little. I was > worried when you said > you couldn't get onto my site... the address is > http://www.bombobeach.com to > join and record your story, click on the "Join now > FREE" bubble and it > will open up a registration panel, fill it out and > within 24 hours your > story will be added to the ARD story section. The > message board works > very much like this one, click on the title of a > message & it will open > for you, scroll down after the message & fill out > the details to leave > your response to the post there. > > To participate in the chat; click on the chat room > link on bombo, scroll > down to the gray area and wait for it to go white. > Click on the load > chat client and wait, this could take as long as > five minutes, another > box will come in, choose a chat name like Rita123 > and click enter, don't > worry about anything else. In a few moments after > that you should be in > the chat room. IF you still have problems, back to > the first page & > click on the little box next to "light chat" then > click on load chat.... > I hope that helps you navigate the bombo site ;-) > > Love & warm gentle hugs, > Jo > > At Tue, 27 Aug 2002, Rita Steele wrote: > > > >Jo, > >Thanks for e-mailing me. I've been following your > >e-mails for several months now. I've learned so > much > >from all of you on the web site. I tried getting on > >you bombobeach site but I couldn't figure it out, > so I > >gave up. I haven't felt well enough to tackle it > but I > >will give it another try in the future. My story is > on > >the adhesion quilt. I went & saw my surgeon > yesterday, > >thank goodness he is keeping me on disability for > now. > >He said he is going to set me up with a "GOOD" Pain > >Management Dr. I've been to two others but neither > of > >them seemed or wanted to know anything about > adhesions > >& pain. I've been through nothing compared to most > of > >you but this pain is so all consuming I can't help > but > >get frustrated. Sadly, I agree, there is comfort in > >talking & knowing other people who have adhesions. > >I've made a few friends on here that I really enjoy > >corresponding with. Thanks so much for all of your > >care & concern I really appreciate it. It sounds > like > >you are having a really positive experience with > the > >Spray Gel. Please keep all of us posted with your > >progress, it's very encouraging. My thoughts & > prayers > >are with you for a speedy & healthy recovery. > >Take Care, > >Rita in AZ > >--- Jo Eslick <joanne@bombobeach.com> wrote: > >> Hi Rita, > >> > >> I am not sure if we have met before... I am > Joanne > >> Eslick and I live in > >> Australia. I had to write and just let you know > >> that your fighting > >> spirit shone through your post and I can see the > >> familiar pattern of > >> fighting the pain to be normal and fighting to > find > >> a way to live with > >> the pain until someone listens and believes that > you > >> really are still in > >> pain!! > >> > >> I have just finished writing a paper that > describes > >> my last three > >> surgeries, the first one was April 2001, then > April > >> 2002 and the most > >> recent, on August1. I am fortunate to feel > pretty > >> good this time, > >> SprayGel is available in Australia and I was > amongst > >> the first patients > >> in my state to receive it. I can't believe the > >> difference it made to my > >> recovery and for the first time since February > 2000 > >> I woke up after > >> surgery only feeling surgery pain only!! NO > >> ADHESIONS PAIN at all!! It > >> really was the weirdest feeling, and exhilarating > >> and intoxicating too! > >> > >> I know I struggled to get recognition for my pain > >> after my disastrous > >> hysterectomy in Feb 2000 and it was almost twelve > >> months of a continual > >> track from doctor to doctor until I found someone > >> who cared and actually > >> believed I had pain!! I totally empathise with > your > >> frustration! > >> > >> Don't give in to the pain or your employer or > >> Doctors Rita, keep looking > >> for someone who will believe you are in pain and > >> keep seeking answers > >> and relief. > >> > >> I started my own web site, which has become the > >> Australian Adhesions > >> Support Group, but all my international ARD > friends > >> are more than > >> welcome to visit and become members. I have a > >> section called "How to > >> Cope" were I have listed and described various > >> alternative methods to > >> help control pain in association with pain > >> medication, or if you haven't > >> been able to get any.... then at least you can > try > >> these suggestions!! > >> I also encourage fellow ARD sufferers to > contribute > >> their ideas and ways > >> of dealing with pain, because I think we can all > >> learn so much from each > >> other. > >> > >> There is comfort in knowing there are other > people’ > >> suffering as we do > >> isn’t there? I can remember the first time I > >> stumbled across this > >> message board. I cried for hours as I read the > >> messages on the board > >> and the stories on the adhesions quilt. There > was a > >> sense of release > >> and comfort knowing that I wasn't a freak, what I > >> was suffering was a > >> very real and painful illness and it WASN'T ALL > IN > >> MY HEAD!! > >> > >> If you would like to read my story, please visit > >> http://www.bombobeach.com and > >> over this weekend my Webmaster and I will be > adding > >> a new section that > >> will include my story about my last three > surgeries > >> and the results from > >> my latest surgery using the SprayGel barrier. > >> > >> I am thrilled with my future outlook and now I > have > >> more time and energy > >> to devote to helping fellow sufferers find their > own > >> peace and > >> treatment. On Wednesday nights from 8pm to 10pm > US > >> Eastern Standard > >> time, we meet in the chat room on bombo.... this > >> week there were up to > >> nine of us I think, and the transcript of that > chat > >> can be found on the > >> bottom of the chat page in the archive section. > >> Perhaps you might like > >> to join us some time, it is an open invitation > for > >> anyone who reads this >
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