Thank you for your kind words :-) It is always nice to know that I am able to help someone, even just a little. I was worried when you said you couldn't get onto my site... the address is http://www.bombobeach.com to join and record your story, click on the "Join now FREE" bubble and it will open up a registration panel, fill it out and within 24 hours your story will be added to the ARD story section. The message board works very much like this one, click on the title of a message & it will open for you, scroll down after the message & fill out the details to leave your response to the post there.
To participate in the chat; click on the chat room link on bombo, scroll down to the gray area and wait for it to go white. Click on the load chat client and wait, this could take as long as five minutes, another box will come in, choose a chat name like Rita123 and click enter, don't worry about anything else. In a few moments after that you should be in the chat room. IF you still have problems, back to the first page & click on the little box next to "light chat" then click on load chat.... I hope that helps you navigate the bombo site ;-)
Love & warm gentle hugs, Jo
At Tue, 27 Aug 2002, Rita Steele wrote:
>
>Jo,
>Thanks for e-mailing me. I've been following your
>e-mails for several months now. I've learned so much
>from all of you on the web site. I tried getting on
>you bombobeach site but I couldn't figure it out, so I
>gave up. I haven't felt well enough to tackle it but I
>will give it another try in the future. My story is on
>the adhesion quilt. I went & saw my surgeon yesterday,
>thank goodness he is keeping me on disability for now.
>He said he is going to set me up with a "GOOD" Pain
>Management Dr. I've been to two others but neither of
>them seemed or wanted to know anything about adhesions
>& pain. I've been through nothing compared to most of
>you but this pain is so all consuming I can't help but
>get frustrated. Sadly, I agree, there is comfort in
>talking & knowing other people who have adhesions.
>I've made a few friends on here that I really enjoy
>corresponding with. Thanks so much for all of your
>care & concern I really appreciate it. It sounds like
>you are having a really positive experience with the
>Spray Gel. Please keep all of us posted with your
>progress, it's very encouraging. My thoughts & prayers
>are with you for a speedy & healthy recovery.
>Take Care,
>Rita in AZ
>--- Jo Eslick <joanne@bombobeach.com> wrote:
>> Hi Rita,
>>
>> I am not sure if we have met before... I am Joanne
>> Eslick and I live in
>> Australia. I had to write and just let you know
>> that your fighting
>> spirit shone through your post and I can see the
>> familiar pattern of
>> fighting the pain to be normal and fighting to find
>> a way to live with
>> the pain until someone listens and believes that you
>> really are still in
>> pain!!
>>
>> I have just finished writing a paper that describes
>> my last three
>> surgeries, the first one was April 2001, then April
>> 2002 and the most
>> recent, on August1. I am fortunate to feel pretty
>> good this time,
>> SprayGel is available in Australia and I was amongst
>> the first patients
>> in my state to receive it. I can't believe the
>> difference it made to my
>> recovery and for the first time since February 2000
>> I woke up after
>> surgery only feeling surgery pain only!! NO
>> ADHESIONS PAIN at all!! It
>> really was the weirdest feeling, and exhilarating
>> and intoxicating too!
>>
>> I know I struggled to get recognition for my pain
>> after my disastrous
>> hysterectomy in Feb 2000 and it was almost twelve
>> months of a continual
>> track from doctor to doctor until I found someone
>> who cared and actually
>> believed I had pain!! I totally empathise with your
>> frustration!
>>
>> Don't give in to the pain or your employer or
>> Doctors Rita, keep looking
>> for someone who will believe you are in pain and
>> keep seeking answers
>> and relief.
>>
>> I started my own web site, which has become the
>> Australian Adhesions
>> Support Group, but all my international ARD friends
>> are more than
>> welcome to visit and become members. I have a
>> section called "How to
>> Cope" were I have listed and described various
>> alternative methods to
>> help control pain in association with pain
>> medication, or if you haven't
>> been able to get any.... then at least you can try
>> these suggestions!!
>> I also encourage fellow ARD sufferers to contribute
>> their ideas and ways
>> of dealing with pain, because I think we can all
>> learn so much from each
>> other.
>>
>> There is comfort in knowing there are other people’
>> suffering as we do
>> isn’t there? I can remember the first time I
>> stumbled across this
>> message board. I cried for hours as I read the
>> messages on the board
>> and the stories on the adhesions quilt. There was a
>> sense of release
>> and comfort knowing that I wasn't a freak, what I
>> was suffering was a
>> very real and painful illness and it WASN'T ALL IN
>> MY HEAD!!
>>
>> If you would like to read my story, please visit
>> http://www.bombobeach.com and
>> over this weekend my Webmaster and I will be adding
>> a new section that
>> will include my story about my last three surgeries
>> and the results from
>> my latest surgery using the SprayGel barrier.
>>
>> I am thrilled with my future outlook and now I have
>> more time and energy
>> to devote to helping fellow sufferers find their own
>> peace and
>> treatment. On Wednesday nights from 8pm to 10pm US
>> Eastern Standard
>> time, we meet in the chat room on bombo.... this
>> week there were up to
>> nine of us I think, and the transcript of that chat
>> can be found on the
>> bottom of the chat page in the archive section.
>> Perhaps you might like
>> to join us some time, it is an open invitation for
>> anyone who reads this
>> very long post! LOL
>>
>> I will keep you in my thoughts and prayers Rita and
>> watch for your
>> future posts here and perhaps on bombo's message
>> board too...
>>
>> --
>> Love and gentle hugs,
>> Joanne Eslick
>> Founder Australian Adhesions Support Group
>> http://www.bombobeach.com
>> NSW Australian Co-ordinator of
>> International Adhesions Society
>> http://www.adhesions.org
>>
>> --
>> I am not a medical person, and all my messages are
>> based
>> on personal experience. I am a fellow adhesions
>> sufferer
>> reaching out to help others.
>>
>> http://www.adhesions.org/forums/listcmds.htm
>
>http://finance.yahoo.com
-- Love and gentle hugs, Joanne Eslick Founder Australian Adhesions Support Group http://www.bombobeach.com NSW Australian Co-ordinator of International Adhesions Society http://www.adhesions.org
-- I am not a medical person, and all my messages are based on personal experience. I am a fellow adhesions sufferer reaching out to help others.