Re: New here and need some advice

From: melissa (thegreatstewarts@msn.com)
Mon Aug 26 19:56:51 2002


At Mon, 26 Aug 2002, Jo Eslick wrote: >
>Hi Melissa,
>
>You could possibly have adhesions, and unfortunately a scope won't tell
>you that, only a diagnostic laperascopic surgery can do that....
>
>Please read stories on the adhesions quilt and my story on
>http://www.bombobeach.com I started off with a hysterectomy in February 2000
>and on the 1st of August underwent my fifth major surgery.
>
>You need to continue to complain and be determined to get your doctors
>attention and to help you find some relief from the pain. One of the
>problems many women find at the stage you are at now, is a diagnosis of
>Irritable Bowel Syndrome, the problem is.... it's usually the adhesions
>on the outside kinking, narrowing or sometimes ending up blocking our
>bowels that leads to emergency surgery and more adhesions. Get the
>diagnosis before you get to an acute stage.
>
>RESEARCH,RESEARCH and then do some more, keep asking questions here,
>read the message boards and our stories, don't get one opinion I say
>three is the least... you want to find a specialist who BELIEVES that
>adhesions cause pain and who treats adhesions sufferers with dignity &
>respect, and that is the problem.... you will need to search to find
>the right doctor, but they are out there Melissa, just make sure that
>when you agree to ANY treatments or procedures it is a joint decision
>between YOU & your doctor, NOT your doctor telling you what you need. A
>GOOD doctor always LISTENS carefully to what you say WITHOUT talking
>over the top of what you have to say, or not taking notice or responding
>to what you have said.
>
>These are all VERY IMPORTANT indicators of a doctor who believes in the
>"TEAM APPROACH" where the doctor/patient relationship is a two way
>street.
>
>I am in Australia, so I am unable to recommend anyone to you, but if you
>want to visit sunny, beautiful Sydney…. LOL that's a different story
>;-)
>
>I hope your pain continues to be intermittent and doesn't progress to
>the constant mind bending and debilitating pain that many have lived
>with for years.... including me until recently.
>
>Love & warm gentle hugs,
>Jo
>
>--
>Love and gentle hugs,
>Joanne Eslick
>Founder Australian Adhesions Support Group
>http://www.bombobeach.com
>NSW Australian Co-ordinator of
>International Adhesions Society
>http://www.adhesions.org
>
>--
>I am not a medical person, and all my messages are based
>on personal experience. I am a fellow adhesions sufferer
>reaching out to help others.
>

Thank you so much for this advice. I can tell you I am so relieved to hear so many people telling me they feel this way too! When you have doctors telling yu and looking at you like you are crazy it makes you even doubt yourself! I will keep you updated on what happens at the doctor. Hopefully he will be understanding! Thanks again!


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