Re: Advice or word's of wisdom needed

From: Msvirgo9459@aol.com
Sun Aug 18 08:55:07 2002


Laura, First of all they are not looking at you that way because they don't beleive you .THey are looking at youthat way because they are that ignorant they have no idea what to do for you.If this is your first laparoscopy and they are telling you they will have to cut you larger I would not let them touch me. If you have adhesions you need an adhesion specialist.You need to go to the adhesion Quilt and read some of the stories. If you let some one who doesn't know how to treat adhesions cut on you you will wind up in worse shape than you are now. There are 4 adhesion intellegent doctors that are mentioned in some post. I know it may be hard but take advice and find someone that will help you get better than wasting your time,money and energy on someone who will make your condition worse because they fail to educate themselves on how to care for adhesions. They will tell you oh we know and this and that but it isn't true. You will get email from some of the most educated people on this board and don't ignore their intellegence. Helen D.,and Bev D have some important info they can share and also Lisa has just had surgery in Germany she will share with you I am sure and A few others. The only adhesion barrier that seems to have given anyone success is Spraygel which is not US approved but is in clinical trials in Atlanta I think and Maybe Pennsylvania.Then you need the special laparoscopic procedure to prevent further adhesions it has to be less traumatic and that takes a specialist not a run of the mill doc. So please take heed and help yourself the right way to save yourself a lifetime of agony.Much Love and Gentle hugs for I know you are in pain and it's not in your head.We are here to listen ,helpif we can,feel for you and gripe too .It is hard for us all. We have bad days and good. Read Karla Nugyen's story on the quilt at adhesions@adhesions.org and you will find wealth of info and sadness. ANd ask all the questions you want and one of us will try to help. Remember we are in pain too and some days we can't even sit at this puter or we are in such pain we don't even feel we can help others so be patient withus. You can email me privately anytime @Msvirgo9459@aol.com Love Lillian

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