Re: IM MAD!!!!!!!!!!!!!

From: Robin M (rmasse2333@aol.com)
Tue Jul 23 13:30:52 2002


Dear Shawnna I also have trouble with my bladder because of adhesions. I had constant presure & had to go all the time. With decreased stream. I had to push to start & then just dribble, then cough & pee like crazy & using pads. My Dr just put me on Detrol LA. It has helped a great deal. At times, I have to use a cane to help me walk. Especially when my intestines aren't working, the pain is much worse. I also have problems with my knees. The inside of the knee cap is rubbing on the femur, on both knees. I am 41, but most days, I feel twice as old. Also I can relate about the sex. I did sleep a bit better last night, but I was up several times last night. I am very lucky because I have a great DR. She always makes sure I have enough pain meds & is always learning more about adhesions, even though I am her only patient that suffers from them. I am also very lucky I have a WONDERFUL husband! He cooks, he cleans, does laundry and even windows! We have been married going on 19 years. But together for almost 24 years. He fixes my dinner plate most of the time so I don't have to get up to do it my self. He is so good to me & never lets me feel like he is tired of hearing about the pain & stuff because of the adhesions. He knows so much about adhesions, you would think he was the one with them. Thanks for listening to me ramble on. love robin M

At Tue, 23 Jul 2002, Sl72396@aol.com wrote: >
>Robin,
> YOU GO GIRL!!!!!!!!!! It is so terrible the crap we all have to go
>through, You know that if it was that doctor that wasn't able to have sex
>because of the pain and if it was there money being spent they would view
>things a lot different!!!! Another thing I have learned is that if you have
>insurance they really sent you for bogus test, and then we have to face the
>possibility of our insurance companies cutting us off!!!!! I have to say
>after countless doctors and feeling like giving up so many times I did find 2
>wonderful doctors and I really thank God for them, the only problem was the
>gyn was afraid to touch me because I am to messed up inside, so I have a
>appointment on Aug. 7th with a surgeon in Memphis who has supposely had
>wonderful results. But I am scared to get my hopes up, because you just never
>know how these things might go. Someone about a month ago posted on here
>that we need to start posting all the crappy doctors names online, I think
>that is an excellent ideal!!!!! something has just got to give here, we all
>can't live our lives like this in constant HELL. I also want to say I know
>how you feel about sex, I decided last week that I was going to make love to
>my hubby no matter what And now I am walking with a cane!!!!! I hurt so bad
>that just getting out of bed to go to the bathroom is murder. and now I am
>on meds to help with bladder control, here I am just 32 years old walking
>with a cane and needing to wear stupid diapers!!!!!! But as you all know
>"adhesions don't cause any of this" ha ha !!!!!!!!!! have you ever wanted to
>just spit in there face????? because I have, and the day may come when I do
>just that!!!!!!!! Robin, Here's to you girl, do what ever it takes to be
>heard, I'll be thinking of you and praying for you!!!!!!
>LOTS OF HUGS
>SHAWNNA


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