Tish - spina bifida and downs syndrome

From: Karla N (ifirgit@yahoo.com)
Fri May 3 21:21:44 2002


Tish, When you wrote that your daughter is being tested for downs or spina bifida it made me wonder if she had that blood test that showed she might be a high risk for those disorders. Did she? If she did, please tell her to relax a bit (I know its easier said than done). My daughter tested extremely high (in her case she had a 1 in 25 chance...1 in 300 is considered high) of having a baby with Trisomy 18, or three 18 chromosomes, when she was pregnant with Brayden. Trisomy 18 babies usually die inutero at around 30 weeks. If the do survive they normally die in childbirth. If they survive through childbirth, 90% die within the first year. My daughter spent months worrying about whether or not her baby had problems or not or whether or not he was going to live. She was told that she needed to undergo a higher level of ultrasound. One of the main signs of a trisomy baby is clenched fists. Brayden's fists were not clenched. They then wanted her to undergo an amniocentisis but she refused. She did not want to put her baby at any higher risk and believed that if it was meant to be it was meant to be. Brayden did not have Trisomy 18. Too often these tests throw out false positives. The doctors pass this information on to the parents and they in turn spend nine months worrying about their child. I think that they should stop performing these tests and passing bad information on to parents...causing them to lose out on the joys of pregnancy. Here's praying that everything works out for your daughter and her baby. Love, Karla Tish <CookieTish@aol.com> wrote: Ohhh Karla...I just bawled when i read about your Grandson..Words could never express how sorry i was to hear about that..and please please dont ever stop giving us your overprotective advice..i printed out what you wrote also and let My Daughter in Law read..she too was in tears..and asked me to thank you for your advice..and that she was soo sorry for your loss. Jen had a test today to see if the baby has downs syndrome or spina bifida.and if either of them come back positive she will have to have an amniocentisis..and she is scared to death..and i just asked her what she would do if this baby has one of those diseases and she of course said i would love it just the same..and do my best to take care of it..and that i didnt think that God would give us any more than we can stand..so lets not worry about things like this until we have too..finally she agreed and calmed down a little bit. Erica stayed with me today while they went to the Drs..and boy oh boy did i enjoy that..she kept telling me that she is gonna take care of me..and she tried..we have a small fridge on the back porch to keep the kids drinks and extra bottles of water etc in..and she would go and bring me a bottle of juice or water or something..every so often..and she would say..now does that make you feel better ..shes sure a sweetie..and i sure miss the days when i could run around in the yard with her...or swing or pet the horses or whatever.. but i have faith that i will be there again.. Again Thank You For the advice.. and for all that you share with us. God Bless You and Your Family. Love and Hugs. Tish

Yahoo! Health - your guide to health and wellness


Enter keywords:
Returns per screen: Require all keywords: