Re: IVP was negative

From: Kelly Murray (mkmurray@cyberport.com)
Wed Apr 17 06:51:37 2002

Karla, I am not sure why I think I have a fistula. I guess because when my stomache is hurting, then it travels down to the bladder and I have leakage. It just feels like it is all connected together.Do you know what I mean? The leakage seems to stem from the stomache rather than the bladder. I have never had fecal matter come through. Thanks for the info. Kel -------Original Message------- From: adhesions@adhesions.org Date: Wednesday, April 17, 2002 12:29:23 AM To: Multiple recipients of list ADHESIONS Subject: Re: IVP was negative Kel, What kind of fistula are you thinking it might be? Where do you think it would be connected? I have had a number of fistulaes in the past. The first one was the one that actually caused the loss of my bladder. (They had done several repairs to my bladder, actually making a new bladder out of bowel at one point....I had severe infections with each surgery. Because of this I developed the fistula...but I still blame the adhesions because if they had removed the adhesions instead of doing the surgery on my bladder I wouldn't have this problem.) I had a connection from my bowel into my bladder. It was very obvious. My urine was filled with fecal material. The other fistulaes were from my bowel to my abdominal wall. Since I had an open wound it would drain out the opening. Prior to one surgery they had me drinking golytely for bowel prep...this normally makes me vomit, but this time not only was I vomiting but t! he prep was coming out my wound almost as fast as it was going in. I am not a doctor, but I would be more likely to suspect that your problems are caused by adhesions encapsulating your bladder...squeezing it and putting pressure on to cause the leakage (my original bladder repairs were to stop the leakage that I was having) then to suspect a fistula. The symptoms you name just seem to ring so familiar to me. Other than the symptoms I listed above there were no other signs of my having a fistula. When they suspected fistulaes with me, I was made to drink some awful charcoal solution. I don't know if this is something you should ask for....if it would even show up depending on where you think a fistula might be? Just my thoughts. Karla Kelly Murray <mkmurray@cyberport.com> wrote: 
--

Robin,
I have incontinence when I BREATHE!!! I even have it when I am sleeping.
The pessory ring is a devise that is inserted that kind of moves the urethra
and supports things. Gads! It was so painful. The Dr.is just trying
different ways to stop it.  So far, nothing helps.
I keep telling them that when my adhesions hurt in my pelvic area is when I
have leakage so I am sure it is connected.  I have asked if it could be a
fistula and they keep telling me that it didn't show up but I know that
things don't always show up in their tests.
I feel like I am falling apart. Upper stomache pain, pelvic, back pain and
incontinence. Now my hips are starting to hurt all of the time.  Take me out
behind the barn!
Kel

-------Original Message-------

From: adhesions@adhesions.org
Date: Tuesday, April 16, 2002 09:33:45 AM
To: Multiple recipients of list ADHESIONS
Subject: Re: IVP was negative

Dear Kelly
Yes, I have incontininence, but mostly when I cough, sneeze or laugh.
Sometimes I have it when I stand up. what is pessory ring? I haven't
hear of it. They have never found any problem with my bladder. I am
sure it is the adhesion. I have always had adhesions on my bladder. I
am 41 and it is very frustrating!! One time, I sent my hubby to the
store to get "pee pads", he came home with Mens!! They are about 3 x
bigger than those for women. I had to use them because that was all I
had! It was almost like a diaper! LOL Once I was feeling better, I
bought womens pads & showed him the difference. He kind of felt bad,
but I thought it was funny.
love
robin
At Tue, 16 Apr 2002, Kelly Murray wrote:
>
>Robin,
>It's sad that I am only 42 and have to wear pads for the incontininence.--

>They put a pessory ring in me that was so painful that I took it out. T ey
>are going to put it back in! after I get my spinal done. I think the ring
>presses on adhesions.
>Do you have incontinence?
>Kelly
>
>-------Original Message-------
>
>From: adhesions@adhesions.org
>Date: Tuesday, April 16, 2002 05:27:03 AM
>To: Multiple recipients of list ADHESIONS
>Subject: Re: IVP was negative
>
>Dear Kelly,
>I know what you mean about letting "anyone" do surgery. I just hope I
>didn't mess up Dr Korell's work with my last surgery. I also have had
>bladder problems. It seems to be the worst right now. I tend to always
>have pressure on my bladder & I am having pain now too. It sometimes
>takes be 5 mins to go pee!
>robin
>
>--
>
>At Mon, 15 Apr 2002, Kelly Murray wrote:
>>
>>Jen,
>>Since I have suffered from ARD, I have had major bladder problems with t
>sts
>>all! coming back normal. I do know now that adhesions can cause bladder
>>problems without them being able to tell where the problem is.
>>Kel
>>
>>-------Original Message-------
>>
>>From: adhesions@adhesions.org
>>Date: Sunday, April 14, 2002 05:43:06 AM
>>To: Multiple recipients of list ADHESIONS
>>Subject: IVP was negative
>>
>>Hi Everyone,
>>I posted on here on April 4th with my story.
>>At that time I told you I was going for an IVP. Well, I did and it came
>>back negative. My blood tests were good and I am assuming my pap was
>>fine too because he didn't say anything about it..
>>
>>--
>>
>>I am angry though. When I told him I was more concerned with the pain
>>in my right side he dismissed it because he said we did all we could do
>>to rule o! ut anything. hmph!
>>
>>Sometimes when I press on my right side, I get pain that shoots up and
>>around to the middle of my stomache.
>>My original adhesion was from my right ovary which caused a bowel
>>obstruction!! Is he forgetting this????
>>
>>Well, now he is sending me to the urologist because there is STILL bloo
>>in my urine (not visible blood) I may be having a cystoscopy done.
>>
>>I mean, maybe there is something in my bladder, I would rather have it
>>looked at to be on the safe side but I get more pain in that right side
>>and in my upper stomache area than the lower pelvic area.
>>
>>Is this the "norm" for adhesion patients? Test after test? Doctors not
>>really listening.
>>
>>My doctor told me if it was adhesions, I would have more of a crampy
>>pain. I know from reading this forum that adhesions can! cause many
>>other pains as well.
>>
>>Well, thanks for listening again,
>>I hope everyone is feeling well today.
>>Jen
>>
>>.
>>
>.
>

.

</A> -
      online filing with TurboTax
      <DIV>&nbsp;</DIV></TD>
</TR>


<TR>
<TD id=INCREDIFOOTER width="100%">


	<TABLE cellPadding=0 cellSpacing=0 width="100%">
	<TR>
	<TD width="100%"></TD>
	<TD align=middle id=INCREDISOUND vAlign=bottom></TD>
	<TD align=middle id=INCREDIANIM vAlign=bottom></TD>
	</TR>
	</TABLE>


</TD>
</TR>


</TABLE><SPAN
id=IncrediStamp><SPAN dir=ltr><FONT face="Arial, Helvetica, sans-serif"
size=2>____________________________________________________<BR><FONT
face=3D"Comic Sans MS" size=3D2><A=20
size=2>____________________________________________________<BR><FONT
href="http://www.incredimail.com/redir.asp?ad_id=309&amp;lang=9"><IMG alt=""
hspace=0 src="cid:E9ADB4C0-62F8-4856-B509-921D9046A392" alignºseline
border=0></A>&nbsp; <I>IncrediMail</I> - <B>Email has finally evolved</B> -
</FONT><A href="http://www.incredimail.com/redir.asp?ad_id=309&amp;lang=9"><FONT
face="Times New Roman" size=3><B><U>Click
Here</U></B></FONT></A></SPAN></SPAN></FONT>
</BODY>

Enter keywords:
Returns per screen: Require all keywords: