Re: Pain...How much is too much??
From: Christina (angelnstix@msn.com)
Thu Mar 7 22:34:57 2002
At Thu, 7 Mar 2002, Jo Eslick wrote:
>
>Hello Christina,
>
>I thought your question was just spot on! How much pain is too much?
>Before my hystorectomy I thought it couldn't get any worse than what I
>was already experiencing WRONG I HAVE had the "hysterectomy" and I
>almost lost my life! Now my pain doesn't even compare to what I had
>prior to the "hyster" .... it is such a hard question to answer,
>because no two people are alike, no two cases are alike, and no two
>outcomes are alike.... what didn't work for me, may work for you.
>
>The other problems include what the surgeon actually finds once inside
>your body.... I myself have decided no more surgery, I had the hyster,
>kept my ovaries for exactly 12 months and then had them removed because
>they were attached to my vagina bladder and bowel.
>
>Christina, you are right, you are not alone.... welcome to the board...
>I invite you to read my story, I am the founder of the Australian
>Adhesions support Group site http://www.bombobeach.com and you will find my
>story there. There is also one about my friend Karla... a US citizen
>who has had over 50 surgeries in the 45 years of her life... it is so
>hard to imagine! I believe that her story demonstrates the extreme end
>of what can happen to us. Some people seem to be more suseptible to
>adhesions than others. Why? I haven't found any research to give me an
>answer, because quite frankly adhesions are the biggest and most hidden
>side affect of surgery, but surgery cannot be blamed in every case.
>
>When you have finished surfing at bombo, come back here and read the
>stories on the adhesions quilt. You know Christina a hysterectomy is
>NOT a cure for adhesions. What YOU need to find is a good
>"Adhesiologist surgeon" who can take down your existing adhesions and
>using a barrier to discourage new adhesions forming..... from my
>research and the many hours I have spent chatting and reading...
>hysterectomies lead to a nose dive on your life.....(some do manage to
>live happily ever after though....BUT none that have problems with
>adhesions as far as I know) BUT only you can make the decision, our
>purpose here at IAS & bombobeach, is to empower you with enough
>knowledge about adhesions to make a well informed decision about your
>future treatment and pain management. We also are a sounding board,
>offer friendship, support, we care about you and the soundless thousands
>who haven't had the opportunity of finding a group like ours. Let us
>know how you are and don't hesitate to ask more questions....
>
>Love & gentle hugs,
>Jo http://www.bombobeach.com
>
Hi, How do I go about finding an Adhesiologist surgeon? Anybody from
here know of one in Colorado or how to find one? Thanks so much Jo for
responding...what a wonderful site!! I love your site as well!! Christy
>
>--
>I am not a medical person, and all my messages are based
>on personal experience. I am a fellow adhesions sufferer
>reaching out to help others.
>