Sue,
I know how you feel. I had my last surgery in May of last year and I am
back to the same 24/hr a day pain and Gastro. problems. I also have the
burning pain and feel like my rectum and vaginal area are "Smooshed"
together along with a lot of bladder problems. Some days I am ready to have
surgery again just to have a few days relief but then I know that it would
just come back full circle.
My massage therapist friend started some chinese threrapy on me last night
for the intestinal disturbances and I will go every other week to have it
done. She worked a lot on my feet and did some cranial work. I am hoping
this will help a little. If it does, maybe you could look into this for your
intestinal problems.
Kel
-------Original Message-------
After reading many of your heartfelt messages, I feel the need to
express why I have agreed, and actually requested to have another
laparoscopy.
It is not so much the many types of pain I have experienced be it
sitting (which also seems to go along with pelvic congestion syndrome),
but also like many of you, standing, lying down, walking, bending, etc.,
etc., it is the sickening and totally debilitating gastrointestinal
problems that may be the result of adhesions or, possibly endometriosis
or both. Thank god the pain can be managed with meds. As for the
gastrointestinal symptoms, the drug companies haven't come up with meds
that seem to do the trick at least not totally. If it weren't for
Reglan, my bowels, in particular my sigmoid wouldn't move at all. What
I cannot endure is both - pain, and feeling like I'm going to vomit, or
the extreme agitation I experience from the burning-like pain I have in
my lower abdomen at 3:30 A.M., every A.M. which is only relieved when a
stand up, walk around for a bit and hopefully have a bowel movement.
After that if I'm lucky, I'm able to get back to sleep.
On top of all of this, there's depression. I feel my life has been
robbed. I should be grateful that I am in fact alive as, I was
diagnosed and treated successfully (I hope) for early stage breast
cancer last year, but I guess maybe I'm greedy. I want to be able to
enjoy my life HOPEFULLY longer than a couple of days a month which
brings me to the laparoscopy. I need to know what is going on in there,
have the situation assessed and if its not any worse than the second lap
which was virtually clean then perhaps take down the adhesions and
remove any endo and perhaps I can get some relief and enjoy a little of
my life.
Thank you for opening your hearts.
Love,
Sue
.