Re: Julie- burning pain

From: Julie Johns (
Tue Jan 29 23:48:41 2002

Jean, I am grateful for your reply to help me figure out my pain source. You referred to "RSD" causing burning pain. What is "RSD"? Thanks, Julie

>----- Original Message -----
From: Jean Long <> To: Multiple recipients of list ADHESIONS <> Sent: Sunday, January 27, 2002 2:02 AM Subject: Julie- burning pain

> Julie Johns,
> Maybe you should do a search on the internet for "Shingles".
> I'm not sure what path or paths they lead to know if your burning pain
would > be from that or not, but shingles do burn and are involving the skin. It
> doesn't feel like it is deep inside your body.
> I had Shingles years ago but it was on the one side of my back. I had
> burning, pricking and ripping sensations with it and it felt like it was
> right under or on the skin, although we couldn't see anything.
> I couldn't stand my clothing touching the skin even the slightest or
> anything brushing across the skin.
> Any movement activates Shingles and makes it worse.
> It was a weird sensation. I felt like there would have been something in
my > clothing pricking me and kept changing clothing.
> Heat will also make it worse since it involves the nerves.
> My family doctor diagnosed it right away when I explained it to him.
> I know someone else who also had it on their belly.
> Burning pain usually has to do with the nerves.
> RSD is also a burning pain.
> It could also possibly be nerve entrapment or a Neuroma. I also had a
> Neuroma after one of my surgeries.
> That was one specific spot though and I could feel a small lump inside
> (which disappeared off & on).
> This can be injected with Lidocaine (sp?).
> When I had it the injection completely took it away.
> "SMILE............It confuses people!"
> -----Original Message-----
> From: []On Behalf
> Of
> Sent: Friday, January 25, 2002 9:27 PM
> To: Multiple recipients of list ADHESIONS
> Subject: Re: I'm home! An introduction
> At Fri, 25 Jan 2002, Julie Johns wrote:
> >
> >Lesa, I am new to this site, my PCP thinks my pain is related to
adhesions > from a c-section 2 years ago. Two days ago my OB told me that adhesions
> would not cause the pain I have. She didn't have any other diagnosis for
> me. My pain is very superficial. I have a burning feeling across my
lower > abdomen, sometimes up to my belly button and in my groin area. It feels
as > though it is right under the skin. Nothing has shown up on any tests.
One > ER doctor gave me a cortisone shot at the "bikini line." Nothing has
> worked, except a morphine shot from another ER doctor. Have you or anyone
> else had symptoms like this? Julie Johns
> >

>> >> ----- Original Message -----
> > From:
> > To: Multiple recipients of list ADHESIONS
> > Sent: Wednesday, January 23, 2002 8:31 PM
> > Subject: Re: I'm home! An introduction
> >
> > Mary Ann,
> > Welcome! You sound like so many of us...the doctor who told you
> adhesions don't cause pain should be hung! It is SO irritating to hear
> those kind of things. I have tried so many things over the years to try
and > help my pain. One doctor shot hydrocortisone into my abdomen, it didn't
> work, one tried giving me anti-inflammatories which didn't work either.
> More surgery is only a temporary help and if often the cause of a much
worse > situation. I am currently on pain pills (vicodin es, 4 times a day,
> everyday) and just keeping as positive of an attitude as I can. All of us
> here have different ways to deal with our day to day pain. We have to, we
> really have no alternative at this time that's 100%.
> > Take care,
> > Lesa
> --
> Hi Julie,
> I wanted to put my 2 cents worth in about your pain. Based on what your
> symptoms are - feeling superficial, burning and the path of your pain
sounds > like illionguinal nerve damage. If you can lightly run something over the
> painful area very lightly and it causes you pain - then nerve damage is
most > likely what you are dealing with. Also - mostfolks can't tolerate anything
> being on or around the area - like waist bands from pants or underpants.
> Treatment for nerve damage is about as hard to find as finding treatment
for > adhesions. Nerve blocks in that area with a numbing medicine (not
> cortisone)will provide very short term relief. Most of the people I know
> with this condition are on some form of continual pain medication. If any
of > this sounds like you let me know and I will give you the info I got.
> Tina

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