Re: I'm home! An introduction

From: Julie Johns (
Tue Jan 29 23:22:16 2002

Tina, Thank you so much for responding to my questions. It is such a relief to be able to discuss these symptoms and brainstorm with women who have already done medical research in certain areas. The majority of my pain is just as you explained. Once in a great while I get quite a bit of pain internally just behind my pubic bone. I agree that it might be nerve damage. Could this be caused from my c-section two years ago? I would sincerely appreciate any more information you have about this. Thank you, Julie Johns

>----- Original Message -----
From: To: Multiple recipients of list ADHESIONS <> Sent: Friday, January 25, 2002 6:26 PM Subject: Re: I'm home! An introduction

> At Fri, 25 Jan 2002, Julie Johns wrote:
> >
> >Lesa, I am new to this site, my PCP thinks my pain is related to
adhesions from a c-section 2 years ago. Two days ago my OB told me that adhesions would not cause the pain I have. She didn't have any other diagnosis for me. My pain is very superficial. I have a burning feeling across my lower abdomen, sometimes up to my belly button and in my groin area. It feels as though it is right under the skin. Nothing has shown up on any tests. One ER doctor gave me a cortisone shot at the "bikini line." Nothing has worked, except a morphine shot from another ER doctor. Have you or anyone else had symptoms like this? Julie Johns > >

>> >> ----- Original Message -----
> > From:
> > To: Multiple recipients of list ADHESIONS
> > Sent: Wednesday, January 23, 2002 8:31 PM
> > Subject: Re: I'm home! An introduction
> >
> > Mary Ann,
> > Welcome! You sound like so many of us...the doctor who told you
adhesions don't cause pain should be hung! It is SO irritating to hear those kind of things. I have tried so many things over the years to try and help my pain. One doctor shot hydrocortisone into my abdomen, it didn't work, one tried giving me anti-inflammatories which didn't work either. More surgery is only a temporary help and if often the cause of a much worse situation. I am currently on pain pills (vicodin es, 4 times a day, everyday) and just keeping as positive of an attitude as I can. All of us here have different ways to deal with our day to day pain. We have to, we really have no alternative at this time that's 100%. > > Take care,
> > Lesa
> --
> Hi Julie,
> I wanted to put my 2 cents worth in about your pain. Based on what your
symptoms are - feeling superficial, burning and the path of your pain sounds like illionguinal nerve damage. If you can lightly run something over the painful area very lightly and it causes you pain - then nerve damage is most likely what you are dealing with. Also - mostfolks can't tolerate anything being on or around the area - like waist bands from pants or underpants. Treatment for nerve damage is about as hard to find as finding treatment for adhesions. Nerve blocks in that area with a numbing medicine (not cortisone)will provide very short term relief. Most of the people I know with this condition are on some form of continual pain medication. If any of this sounds like you let me know and I will give you the info I got. >
> Tina

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