Re: To Robin

From: Robin (
Tue Jan 8 07:07:00 2002

Dear Jo It does help to have people that truely understand what we are going through. When I came to this site about 1 1/2 yrs ago, I finally felt validated. I finally felt like it truely wasnt in my head, even though I had the surgical reports to prove I had adhesions. This site has helped so much!! My surgery in Germany showed I had extensive adhesions & the 2nd lap showed I had 50% reformation in a week, and my last surgery showed that my trip to Germany helped alot because I had a small amount of adhesions, but...they have returned! I am not sure what I will be doing now. Love & hugs to all robin

At Tue, 08 Jan 2002, Jo Eslick wrote: >
>Hi Robin.
>I am sorry that your pain has slowly returned, it is hard to accept it isn't it.... we get our hopes up possibly a little to high... and then we feel like we have crashed lower than possible when we finally realise it hasn't worked.
>I am glad that you visit with us every day, it really helps to know that there are others around who understand what we are going through.  I hope that one day there will be a way to make us all feel so much better than we do now, but in the mean time I believe it is important that we tell as many others about our story as we can, because we don't want others to suffer the way we do....
>I try to keep myself positive by staying as active as I can...which isn't very some days... but it doesn't mean that I just don't do anything!  I use that time to work on my book, write letters (snail mail) or answer my email...just like I am doing now.
>I hope that you have someone who is helping, supporting and loving you Robin, because that really makes a big difference doesn't it.
>I hope you let us know how you are getting on...
>love & gentle hugs
>Jo (Australia)
>>From: (Robin)
>>To: Multiple recipients of list ADHESIONS
>>Subject: I sent my story
>>Date: Mon, 7 Jan 2002 10:41:00 -0600
>>I have not posted in a while, but I read every day what is going on. It
>>has been 4 1/2 months since my open abdomial surgery with seprafilm & I
>>have a lot of pain. The surgery did help for a while, but the pain has
>>slowly returned. I am a bit frustrated with the pain. I did send my
>>story today Helen. Helen, when are you going back to Germany for more
>>surgery? I can't rember when it is, but I do wish I could go with you,
>>but financially, I can't. Give Elke & Helmute a big hug for me when you
>>get there! My thoughts, love, prayers & wishes for pain free or less
>>pain days to all.

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