>----- Original Message -----
From: "Karla" <ifirgit@new.rr.com>
To: "Multiple recipients of list ADHESIONS"
<adhesions@mail.medispecialty.com>
Sent: Saturday, November 24, 2001 1:41 AM
Subject: Re: Welcome Kimmi & Dave from Sally
> Kimmi,
>
> No I don't have cancer. I am dying because I have adhesions. I am dying
> because I allowed doctors to remove my bladder and now due to repeated
> surgeries my kidneys are failing and they can do nothing to stop them.
Oh,
> right now they are functioning ok....at a reduced level, but ok. My
family
> was told that it was just a matter of time in April...I had been
> hospitalized early in the month with a major infection and then again late
> in the month with kidney failure. With the infections occuring so close
to
> each other they feel that it will be only a matter of time before the
> kidneys shut down and cannot be brought back. Yes, there was hope that
> surgery would correct the problem...I had been waiting for this surgery
for
> about two years...but now have been told that the urologist doesn't feel
> that he can help me...so he won't perform the surgery. I went back to the
> first urologist who got me into this position in the first place and he
says
> he won't touch me either. So now I wait. But as I wait I try to reach
out
> to people like you...who are in the same position I was five years
ago...and
> try to stop them from going down the same road. Kimmi...read my story on
> the quilt. There is just so much to say and I apologize for coming down
on
> you...but I want you to be able to see those kids of yours...for years to
> come.
>
> Karla
>> ----- Original Message -----
> From: "Kimmi&Dave" <kimmi3@mediaone.net>
> To: "Multiple recipients of list ADHESIONS"
> <adhesions@mail.medispecialty.com>
> Sent: Saturday, November 24, 2001 12:31 AM
> Subject: Re: Welcome Kimmi & Dave from Sally
>
> > Karla,
> > Sorry I made ya scream and make you sick., I was confused on this part
> that
> > you wrote
> >
> > How would you like to be only
> > 45....tired of living your life the way I have to live mine...but know
> that
> > you won't be able to be a wife or a mother....not for very long.
> >
> > Are you terminally Ill? are you dying from cancer? Sorry if its
upsetting.
> >
> > Sorry I can't think of anything else that may help me, I am on my last
> nerve
> > living in pain for 16 years, the last 5 became full chronic pain, I am
> > unable to do so many things, and it makes me feel totally worthless. I
do
> > love and cherish my husband and Kids, and all are awesome, and always
> > willing to help. They constantly ask when I come home from the doctor..
Is
> > he gonna fix you mommy!
> > Really have nothing to say, Nope not today hon.
> >
> > Well off to bed soon.
> > Hugs
> > kimmi
>> > ----- Original Message -----
> > From: "Karla" <ifirgit@new.rr.com>
> > To: "Multiple recipients of list ADHESIONS"
> > <adhesions@mail.medispecialty.com>
> > Sent: Saturday, November 24, 2001 12:37 AM
> > Subject: Re: Welcome Kimmi & Dave from Sally
> >
> > > Kimmi,
> > >
> > > I write this with the best of intentions....but I know that there is
> pain
> > > and anger behind it. I read this post and it made me want to scream.
> > > You make the statement that you would rather take a chance at having
> > > something work than living like you do everyday.....Kimmi you have no
> > clue!
> > > It can get worse and I guarantee you it will...with each surgery it
will
> > get
> > > worse and worse. I do the same things you do for pain...they don't
> help.
> > I
> > > have some relief with ms contin and liquid morphine...but not much.
But
> > for
> > > you to say that you are only 34 and you are tired of not being able to
> be
> > a
> > > mother or wife the way you want to be....it makes me ill. I am sorry
to
> > > come down on you...but yes it makes me sick. How would you like to be
> > only
> > > 45....tired of living your life the way I have to live mine...but know
> > that
> > > you won't be able to be a wife or a mother....not for very long.
> > > Because when you were 34 and in so much pain that you would do
anything
> to
> > > have it end...including more surgery...and then more surgery and then
> > > finally need surgery so bad that if you don't have it you will
> die....but
> > > now no surgeon will touch you....even though they know that you will
> die.
> > > Cherish every moment that you have with your husband and your
> kids...even
> > if
> > > they are painfilled and not what you would like to give them....at
least
> > > they are moments that you can treasure. Don't put yourself at risk
for
> > > losing those moments any sooner then you have to.
> > >
> > > Karla
> > >
>> > > ----- Original Message -----
> > > From: "Kimmi&Dave" <kimmi3@mediaone.net>
> > > To: "Multiple recipients of list ADHESIONS"
> > > <adhesions@mail.medispecialty.com>
> > > Sent: Friday, November 23, 2001 11:17 PM
> > > Subject: Re: Welcome Kimmi & Dave from Sally
> > >
> > > > Sally,
> > > > Thanks for the welcome.And no you won't offend me, everyone is
> entitled
> > to
> > > > their opinion.
> > > > I have had 12 abdominal surgeries, I don't know for me, I would
rather
> > > take
> > > > a shot at having something work that living like I do everyday. Its
a
> > > > possibility that nothing will change or things can get worse but
there
> > is
> > > > also the possibility that at least it might give me a few months or
> > years
> > > > without or less pain maybe that's just living on hopes and dreams. I
> > know
> > > > the pain management doctor always says people who are chronic pain
are
> > > > willing to do anything that offers to be out of pain, and I must be
> > > careful.
> > > > For the most part all the doctors have said no more surgery unless
it
> > > > becomes life threatening because of the amount of surgeries I have
> > already
> > > > had. But 1 doctor my gyn doctor when I see him he says yes and send
me
> > to
> > > > another surgeon because he wants back up just in case something is
in
> > > there
> > > > that's not his field. and the second surgeon replies no lets try
this
> > > first,
> > > > so for 5 years I have been trying this and that and nothing works. I
> > take
> > > so
> > > > much medication to ease off this pain and that doesn't work. I go to
> all
> > > > these PT' programs to ease off pain that doesn't work. I get
> injections
> > > that
> > > > doesn't work. I just need something to work and have to live on that
> > hope
> > > > that something someday work. I am only 34, and I am tired of not
> being
> > > able
> > > > to be the mother and wife I want to be..
> > > > Hugs
> > > > Kimmi
>> > > > ----- Original Message -----
> > > > From: "Sally Grigg" <lostcst@mcn.org>
> > > > To: "Multiple recipients of list ADHESIONS"
> > > > <adhesions@mail.medispecialty.com>
> > > > Sent: Thursday, November 22, 2001 12:59 AM
> > > > Subject: Welcome Kimmi & Dave from Sally
> > > >
> > > > > Dear Kimmi, Welcome to the board. I'm sorry its taken so long to
> write
> > > > > to you. My computer broke and I was "stranded" here in the
> wilderness.
> > I
> > > > > wish you would go to the adhesions site http://www.adhesions.org and look
> at
> > > > > everything. The quilt and all our stories would be a good place to
> > > > > start. And please do not be mad at me for what I am about to say,
> but
> > > > > telling your doctor to do a full big cut and take out what ever he
> > feels
> > > > > like ...well, it might not be such a good idea. So many of us
here
> on
> > > > > the board have had surgery after surgery and no one would
recomment
> a
> > > > > full big cut unless it were life or death.
> > > > >
> > > > > I know a lot about pain. Even after your surgery you could be in
> worse
> > > > > pain. I'm so sorry to say that, but its true. We get our hopes
up,
> > and
> > > > > go through the ordeal, but it doesn't necessarily help with
> adhesions.
> > > > > In the last 18 months I've had three laproscopics, one of which
> became
> > > > > a big, full cut because he sliced my bladder. My abdomen was full
> of
> > > > > adhesions and he couldn't see. Now a different doctor with better
> > > > > equipment might not have done that.
> > > > >
> > > > > Anyway, welcome to the board. There's so much information here and
> > great
> > > > > love and support. The emails from Helen Dynda are great. All my
love
> > and
> > > > > any help I can give you are yours for the asking. And I believe
you
> > > > > when you say it hurts so bad that you don't care what they do, but
> you
> > > > > do care, and it could get worse.
> > > > >
> > > > > Lots and lots of water is good. It helps flush you out and can't
> hurt,
> > > > > although I must say, and you know this already, I'm sure, I'm not
a
> > > > > doctor nor do I have medical training just 34 years of experience
> with
> > > > > adhesions. Prayers to you and yours, Sally at
> > http://www.howardcreekranch.com
> > > > >
> > > > > > Helen,Oh that's right forgot you were not US.. Its possible they
> > carry
> > > > > > that drug, you can actually go to an online pharmacy and find
that
> > > > > > out.You know I sometimes wonder where these doctors heads are
> > someday
> > > > > > and its sad we put our lively bodies on the table and let them
do
> > what
> > > > > > is best. So then it becomes live and learn unfortunately.Now if
> you
> > > > > > need another you will have state take all of what you see that
> many
> > > > > > not be the full cause now but those adhesions are going to grow
> and
> > > > > > attach they need to be cleaned up.With Dr Delise which I need to
> > make
> > > > > > an appt myself with him to discuss surgery. He mentioned he
would
> > > > > > start with lap and then what if that wasn't good enough do you
> have
> > a
> > > > > > problem will full inssision. So I try to tell him like this one
we
> > are
> > > > > > approaching you go in there and you do everything that needs to
be
> > > > > > done. If you anything mentions in your brain well this one might
> > > > > > suspect to go bad treat it now.I don't care about the Lap or
full
> > size
> > > > > > cut just do it and do it now.Tonight again my stomach is swollen
> to
> > > > > > the size of a pregnant woman and the pain pressure feels like I
> > could
> > > > > > push out a baby.. Its terrible and you try and relate that one
to
> > male
> > > > > > doctor they have no clue never pregnant don't
understand.hopefully
> > > > > > together we can all get bits and pieces of treatments and get em
> all
> > > > > > together as one and present this to the doctors and say see
> > > > > > FIXME!!! Well hon gotta run.. Happy thanksgiving.Kimmi
> > > > > >
>> > > > > > ----- Original Message -----
> > > > > > From: Helen Gibson
> > > > > > To: Multiple recipients of list ADHESIONS
> > > > > > Sent: Wednesday, November 21, 2001 9:27 PM
> > > > > > Subject: Kimmi
> > > > > > Dear Kimmi, thanks for the post, I will consult my Drs and
> > > > > > see if I can get a referral to a pain management Dr, I
don't
> > > > > > know how long I will have to wait, but I will get the ball
> > > > > > rolling.As far as him not removing all the adhesions, who
> > > > > > knows what he was thinking, maybe he was in a hurry?, but
at
> > > > > > least I know now what some of the pain is being caused by.I
> > > > > > will ask my Drs about the neurotin, it may be called
another
> > > > > > name over here in OZ, and see if I can take some to see if
> > > > > > it helps at all.Thanks for caring!!hope your having a good
> > > > > > dayLoveHelen G
> > > > > >
> > > > >
> > > > > to the unsubscribe form at
> > http://www.adhesions.org/forums/listcmds.htm
> > > >
> > > > to the unsubscribe form at
> http://www.adhesions.org/forums/listcmds.htm
> > >
> > > to the unsubscribe form at
http://www.adhesions.org/forums/listcmds.htm
> >
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