Re: To Angie RE- Don't Agree W/Dr.

From: Kimmi&Dave (kimmi3@mediaone.net)
Tue Nov 20 07:01:51 2001


One thing I noticed from having all my laps that my belly button which there is no more just one big ball of scars, has massive adhesions around it. The area is so hard and painful all the time. That if I ever have surgery again will be one of the areas they must clean out. hugs Kim

>----- Original Message -----
From: "Karla" <ifirgit@new.rr.com> To: "Multiple recipients of list ADHESIONS" <adhesions@mail.medispecialty.com> Sent: Monday, November 19, 2001 10:22 PM Subject: Re: To Angie RE- Don't Agree W/Dr.

> Bonnie,
>
> It isn't even about trusting your doctor. You can have all the trust in
the > world in them and like them as a person, but that doesn't mean that they
are > doing what is in your best interest. Oh, sure, they aren't setting out to
> harm you....they just don't realize that every surgery is hurting you more
> and more. By the way....even on the most difficult of cases laprascopic
> surgery can be performed (by the most skilled of surgeons) and is the best
> way to go....fewer adhesions.
>
> Karla
>

>> ----- Original Message -----
> From: "Bonnie L." <babyblu030@aol.com>
> To: "Multiple recipients of list ADHESIONS"
> <adhesions@mail.medispecialty.com>
> Sent: Monday, November 19, 2001 7:47 PM
> Subject: To Angie RE- Don't Agree W/Dr.
>
> > Hi Angie,
> > I just wanted to add my 2 cents. I am 27 years old and I have had many
> > surgeries reguarding Endo and Adhesions. My pain first started when I
> > was 14, around the time I started to menstrate. I lived in constant
> > pain every month. I was diagnosed at 16 with endo. After the birth of
> > my daughter, I notice the pain that I only had once a month was now
> > constant and excruciating. I had docs tell me that it was nothing, that
> > I needed to deal with it blah blah blah. Well, I was 25 when I met the
> > GYN that changed my life from bad to absolutly worse. The first surgery
> > he said " we will go in by laproscope and see what we find, but we
> > cannot do anything if we find anything of problem" I said fine as long
> > as you concure with the other docs. After that surgery I went on
> > Depo-Lupron shots, which helped for awhile and then just quit helping
> > all together. My GYN said " fine lets do a Uteral Sacral Nerve Oblation
> > ( which is called a L.U.N.A ) I said fine. Worked fine but only on the
> > left side. GYN said "fine we'll try a Presacral Neurectomy ( which is
> > more severe surgery because they do this via laparotomy)" I said fine.
> > Worked for 1 month. GYN said " fine let's remove your right ovary." I
> > said fine if it works I will do anything to make this pain stop. Woke
> > up in recovery to hear" we couldn't take your ovary out because it is
> > adhered to your pelvic wall ( this was done by laprascope) we have to do
> > a laparotomy" Fine, I said I trust you. Now by this point I was ready
> > to punch this doctor because all I could think of was this is my life!
> > Nothing is going to help. He's the doctor so I have to listen to him,
> > he knows best. They removed my right ovary and low and behold, it did
> > not help any. Not to mention all this surgery and reoccuring adhesions,
> > that made the pain by far the worst. Finally he did a total abdominal
> > Hysterectomy with left removal of my ovary. (at 26 I was left with no
> > choice) I went a year pain free. Then it happened, 2 days after my one
> > year post op check the pain started again. Worse than ever. I had
> > found another PCP and called him in tears. I was crying so hard because
> > of the pain that he wanted me to come in so he could get me some pain
> > relief. When I had called my GYN he told me " There is NOTHING more I
> > can do for you, we've taken everything out" He was willing to cut me
> > open all those times, but not willing to deal with the post surgical
> > adhesions that have now taken over my life. I live on Morphine now all
> > because I wanted the pain to stop.
> > Where am I going with this story? Well Angie, make sure you ask alot of
> > questions. If you don't trust this Doc find another one. Don't make
> > the samer mistake that I did , because if you do you'll end up like me,
> > in your twenties and in menopause, and worse never be able to have
> > children. I don't mean to scare you but if one person can learn from my
> > mistake I'll be happy. Please make sure that you trust your Doctor.
> > Take Care and good luck!
> > Bonnie
> >
>


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