>----- Original Message -----
From: "Karla" <ifirgit@new.rr.com>
To: "Multiple recipients of list ADHESIONS"
<adhesions@mail.medispecialty.com>
Sent: Monday, November 19, 2001 10:22 PM
Subject: Re: To Angie RE- Don't Agree W/Dr.
> Bonnie,
>
> It isn't even about trusting your doctor. You can have all the trust in
the
> world in them and like them as a person, but that doesn't mean that they
are
> doing what is in your best interest. Oh, sure, they aren't setting out to
> harm you....they just don't realize that every surgery is hurting you more
> and more. By the way....even on the most difficult of cases laprascopic
> surgery can be performed (by the most skilled of surgeons) and is the best
> way to go....fewer adhesions.
>
> Karla
>
>> ----- Original Message -----
> From: "Bonnie L." <babyblu030@aol.com>
> To: "Multiple recipients of list ADHESIONS"
> <adhesions@mail.medispecialty.com>
> Sent: Monday, November 19, 2001 7:47 PM
> Subject: To Angie RE- Don't Agree W/Dr.
>
> > Hi Angie,
> > I just wanted to add my 2 cents. I am 27 years old and I have had many
> > surgeries reguarding Endo and Adhesions. My pain first started when I
> > was 14, around the time I started to menstrate. I lived in constant
> > pain every month. I was diagnosed at 16 with endo. After the birth of
> > my daughter, I notice the pain that I only had once a month was now
> > constant and excruciating. I had docs tell me that it was nothing, that
> > I needed to deal with it blah blah blah. Well, I was 25 when I met the
> > GYN that changed my life from bad to absolutly worse. The first surgery
> > he said " we will go in by laproscope and see what we find, but we
> > cannot do anything if we find anything of problem" I said fine as long
> > as you concure with the other docs. After that surgery I went on
> > Depo-Lupron shots, which helped for awhile and then just quit helping
> > all together. My GYN said " fine lets do a Uteral Sacral Nerve Oblation
> > ( which is called a L.U.N.A ) I said fine. Worked fine but only on the
> > left side. GYN said "fine we'll try a Presacral Neurectomy ( which is
> > more severe surgery because they do this via laparotomy)" I said fine.
> > Worked for 1 month. GYN said " fine let's remove your right ovary." I
> > said fine if it works I will do anything to make this pain stop. Woke
> > up in recovery to hear" we couldn't take your ovary out because it is
> > adhered to your pelvic wall ( this was done by laprascope) we have to do
> > a laparotomy" Fine, I said I trust you. Now by this point I was ready
> > to punch this doctor because all I could think of was this is my life!
> > Nothing is going to help. He's the doctor so I have to listen to him,
> > he knows best. They removed my right ovary and low and behold, it did
> > not help any. Not to mention all this surgery and reoccuring adhesions,
> > that made the pain by far the worst. Finally he did a total abdominal
> > Hysterectomy with left removal of my ovary. (at 26 I was left with no
> > choice) I went a year pain free. Then it happened, 2 days after my one
> > year post op check the pain started again. Worse than ever. I had
> > found another PCP and called him in tears. I was crying so hard because
> > of the pain that he wanted me to come in so he could get me some pain
> > relief. When I had called my GYN he told me " There is NOTHING more I
> > can do for you, we've taken everything out" He was willing to cut me
> > open all those times, but not willing to deal with the post surgical
> > adhesions that have now taken over my life. I live on Morphine now all
> > because I wanted the pain to stop.
> > Where am I going with this story? Well Angie, make sure you ask alot of
> > questions. If you don't trust this Doc find another one. Don't make
> > the samer mistake that I did , because if you do you'll end up like me,
> > in your twenties and in menopause, and worse never be able to have
> > children. I don't mean to scare you but if one person can learn from my
> > mistake I'll be happy. Please make sure that you trust your Doctor.
> > Take Care and good luck!
> > Bonnie
> >
>