Hi Angie,
I just wanted to add my 2 cents. I am 27 years old and I have had many
surgeries reguarding Endo and Adhesions. My pain first started when I
was 14, around the time I started to menstrate. I lived in constant
pain every month. I was diagnosed at 16 with endo. After the birth of
my daughter, I notice the pain that I only had once a month was now
constant and excruciating. I had docs tell me that it was nothing, that
I needed to deal with it blah blah blah. Well, I was 25 when I met the
GYN that changed my life from bad to absolutly worse. The first surgery
he said " we will go in by laproscope and see what we find, but we
cannot do anything if we find anything of problem" I said fine as long
as you concure with the other docs. After that surgery I went on
Depo-Lupron shots, which helped for awhile and then just quit helping
all together. My GYN said " fine lets do a Uteral Sacral Nerve Oblation
( which is called a L.U.N.A ) I said fine. Worked fine but only on the
left side. GYN said "fine we'll try a Presacral Neurectomy ( which is
more severe surgery because they do this via laparotomy)" I said fine.
Worked for 1 month. GYN said " fine let's remove your right ovary." I
said fine if it works I will do anything to make this pain stop. Woke
up in recovery to hear" we couldn't take your ovary out because it is
adhered to your pelvic wall ( this was done by laprascope) we have to do
a laparotomy" Fine, I said I trust you. Now by this point I was ready
to punch this doctor because all I could think of was this is my life!
Nothing is going to help. He's the doctor so I have to listen to him,
he knows best. They removed my right ovary and low and behold, it did
not help any. Not to mention all this surgery and reoccuring adhesions,
that made the pain by far the worst. Finally he did a total abdominal
Hysterectomy with left removal of my ovary. (at 26 I was left with no
choice) I went a year pain free. Then it happened, 2 days after my one
year post op check the pain started again. Worse than ever. I had
found another PCP and called him in tears. I was crying so hard because
of the pain that he wanted me to come in so he could get me some pain
relief. When I had called my GYN he told me " There is NOTHING more I
can do for you, we've taken everything out" He was willing to cut me
open all those times, but not willing to deal with the post surgical
adhesions that have now taken over my life. I live on Morphine now all
because I wanted the pain to stop.
Where am I going with this story? Well Angie, make sure you ask alot of
questions. If you don't trust this Doc find another one. Don't make
the samer mistake that I did , because if you do you'll end up like me,
in your twenties and in menopause, and worse never be able to have
children. I don't mean to scare you but if one person can learn from my
mistake I'll be happy. Please make sure that you trust your Doctor.
Take Care and good luck!
Bonnie