Endometriosis after total hyster.(twice)&psuedo cysts&choc. cysts&pain!
From: Deborah C. (devdal@attcanada.ca)
Fri Aug 17 11:02:21 2001
Angry I am, but keeping positive. Coming to the conclusion they(Drs)
haven't got a clue. From misdiagnosis to danazol to 16 surguries, 3
major(scars going hip to hip)(last one was June 28,2000) and a fialed 6
month lupron injection prior to the last surgury.. All of this and
today, I presently have 5 cysts from 5cm and smaller (solid) from the
trans. vag. ultrasound showings and the conversation consisted
of..."It may be cancer but I doubt it, It could be more psyeudo cysts
but you collected the fluid alot quicker last time(approx. 5 months
ago) with the cyst measurement being 35cmx32cm being drained in his
office throu the vagina with a needle we won't even describe, but I
doubt it, It could be endo, but your hormones are measuring menopausal
and you're not on any HRT (prescription and or natural), so...I just
don't know. You may make the disease on your own but that is very rare.
But...I won't send you away in pain, here's some arthritic
medication...celebrex 200mg, 1 capsule a day and we'll wait and see,
some tylenol #3's to get you through the really bad days and well do
another ultrasound on Aug.22 and we'll take it from there." The chronic
pain clinic suggested sympathetic dystrophy but I feel again we are
masking the problem not curing it. Help me, what should I do ??? I
appreciate your letting me vent, especially today, the pain is almost
unbearable. Your site is a God send. God Bless!
--
surviving, sometimes just barely