Helen C...Yay...a victory!

From: Janet Karam (janetk7@earthlink.net)
Tue Aug 7 16:47:24 2001

Janet is doing the happy dance all over her living room...oh, I'm so happy, so relieved for you Helen! You will be hopefully back to yourself in no time. Really scary close call there, I'm glad your hubby went with you for support...we all would have gone with you, Fudgesicle in hand if we could have. So very pleased that the outcome of your visit is that you got exactly what you needed.

Love you lots,


>----- Original Message -----

From: To: Multiple recipients of list ADHESIONS

Sent: 8/7/01 1:17:11 PM

Subject: Re: I'M BACK ON FOR NOW

Hi Everyone:

Thanks to those that wished me luck and prayers. I went in crying and came

out with a smile for now. My husband went with me for moral support and to

drive as I couldn't drive since Friday. Everyone at the office kept trying

to keep me from seeing Dr. S. and we kept insisting that we would wait all

day as he was my doctor and prescribed the oxycontin for me, and was not the

one that changed it. I knew that he would not let me suffer, and you only

had to take one look at me to see that I was suffering badly, although I had

taken the MS-Contin before getting there (I wanted them to see that it didn't

work). We stood our ground, and said we would wait all day for Dr. S. to see

me and sure enough he came in two minutes later, took one look at me, and

said, "well, the ms-contin doesn't work for you, the oxycontin does, so you

go back on it." I asked if this was done to me because they were afraid of

the DEA and he said, that yes, they went through everyone's files that were

on the oxycontin, decided to try them on another medication, some were able

to make the adjustment to another drug, but I couldn't so that would be noted

in my files, if and when the DEA came in. He spent over an hour with me.

We discussed all the options, and there really aren't any right now, but to

stay on medication. He understands this, that if there were any other

alternative that could help me, I would gladly take it. He is a great big

bear of a man and I gave him the biggest hug I could.

After being on narcotic pain medication for over a year, my blood levels were

read, and everything came back normal, so they aren't doing any damage to my

body. I was given a patch to put on the right sided rib pain. He said now

if the pain lessens there from the patch that would mean that it is skeletal,

if the pain doesn't lessen then it means that this knife-stabbing pain in my

right rib is adhesions and the patch will not work. On the MS-Contin, I felt

every attachment of the adhesions. I hadn't felt this pain in so long, I had

forgotten how horrible the pulling and ripping feeling felt like. The pelvic

floor pressure was terrible and I could feel the pulling off the vaginal cuff

and rectal area. Also, I could not put any pressure on my right leg as it

produced a lot of pain of pulling and burning up to my rib cage area.

I made a victory, but the war is not over. At any time the DEA can come in

there and shut his doors. I feel so badly about this; he is such a

compassionate man, and just doesn't want to see people like myself suffer.

He is not dealing drugs, he is not doing anything criminal, yet he can lose

his license at anytime for trying to help all the chronic pain patients that

other doctors won't help.

I wrote Skip the other night at ASAP. He said if all the DEA Agents were to

get cancer and couldn't find the necessary drugs to take away their pain,

then, and only then, would they understand what we the chronic pain patient

are asking - only that we be kept comfortable and if the oxycontin is

enabling us to live as comfortable a life as we can, why take it away from us

because a few addicts have figured out a way to abuse it.

We all need to write our senators about what the DEA is trying to do. I will

forward the letter from Skip's site as a guideline to use. Please take the

time to write. Just maybe we will make a difference.


Helen C.

--- Janet Karam

--- janetk7@earthlink.net

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