Re: You are going to get better Robin

From: marianne bolding (ojowojo@yahoo.com)
Thu Jul 19 12:49:55 2001


Thank you for sharing this with me, Robin...some people think I ask out of sarcasm, I think...but, I only ask because I want to know the difference between what these top-rated surgeons do as opposed to others. I understand this now. And there's always much comfort in safety...at the same time it's fearful to think that there is no other doctor in the whole U.S. who can or is willing to pursue the same approaches. I don't wish to accept this as truth...I could never afford to have it done so far away...even in PA...so, I don't cling to this theory...I believe that there is someone out there right now...learning more about this...if I don't think that way....I'll never have a surgeory again...when/if time comes and I am in mass pain...it's like a phobia...I can not chose to live that way, or I'll never let anyone touch me again...and that may not be the best answer....for "me". Why can't we find the best laproscopic surgeons with skilled hands who follow the same sort of procedure? If I evergo through the pain like that again...I will find the best laproscopic surgeon who's done it 1,000's of times and give him all the procedure info. on various sites and see if there can't be an open-mind somewhere. People will disagree with me...but, I have no choice but to think this way...the negativity becomes too stressful...and the fear of surgeory becomes heart wrenching....and money is "always" an issue for me. I have it...just not enough of it...I read your story on the quilt last night...I'll pray for you and your surgeory by your local doctor...Maybe he'll be the next Dr. Reich or Dr. Redan...one never knows. --- Robin <rmasse2333@aol.com> wrote: > my 1st surgery with Dr Korell, I was full of
> adhesions. A week later,
> he did the 2nd look lap. I had 50% reformation at
> that time. He got
> them all, but predicted I would have about 15-30%
> reformation. I guess
> that amount is causing my pain, or I could have had
> more grow. I came
> home still on the duragesic patch (it has to be
> gotten off of slowly) &
> very little pain meds for surgical pain. I was then
> off of all meds
> with no pain for about 4 1/2 months & my pain
> started again & has
> progressed rapidly. A new Dr in town is willing to
> do surgery, but he
> wants to open me up so that he can use a barrier
> film. Since I can't
> afford to go back to Germany, I am considering the
> surgery.
> Robin Massengill
>
> At Wed, 18 Jul 2001, marianne bolding wrote:
> >
> >jean-#1=thanks for sending me your
> address...#2=thanks
> >for offering to do the picture....on this 7 day
> >search...it sounds great!!!...but, at the same
> >time...wouldn't they have to go in a third time to
> see
> >if going in the 2nd time caused adhesions...and on
> and
> >on...it's all so interesting in a strange sort of
> >way...how did Robin's 2nd surgeory come out...did
> they
> >see more? I'm not trying to be nosey...but, I
> am...I
> >guess...ha ha...I took a stool softener
> tonight...hope
> >it works...I can't stand the bloating anymore.
> >marianne
> >--- Jean Long <creative@enter.net> wrote:
> >> Marianne,
> >> Robin had 2 surgeries because Dr. Korell does a
> 2nd
> >> look about 7 days after the initial adhesion
> >> surgery. The 2nd look surgery is to see if any
> >> adhesions came back and to remove them while they
> >> are soft and pliable if there are any (this is
> >> suppose to be the time frame that they would come
> >> back in). This is routine for him and Dr. Redwine
> in
> >> Oregon also does it this way.
> >>
> >> Don't mean to bud into Robin's business with this
> >> just thought I could help with that part incase
> she
> >> isn't on here to see it!
> >> JEAN
> >>
> >> Quote of the week:
> >> "Learn from the mistakes of others........
> >> You can't live long enough to make them all
> >> yourself"
> >

>> >>> ----- Original Message -----
> >> From: "marianne bolding" <ojowojo@yahoo.com>
> >> To: "Multiple recipients of list ADHESIONS"
> >> <adhesions@mail.medispecialty.com>
> >> Sent: Wednesday, July 18, 2001 4:58 PM
> >> Subject: Re: You are going to get better Robin
> >>
> >> I am curious...you've been through 2 surgeories
> with
> >> Dr.Korell...which means your adhesions came back
> and
> >> he did it again. What still makes you want to go
> >> back
> >> to him? For all this talk of Dr. Reich and Redan
> >> and
> >> this German dr. noone seems to be free of
> >> pain...what
> >> makes it worth the travel and money when they
> seem
> >> to
> >> accomplish no more than the other doctors? Is it
> >> the
> >> procedure itself and the feeling that they are
> more
> >> compassionate, more safe? I am curiuos because I
> >> use
> >> this sight to outweigh wether it's worth it to go
> >> through any form of adhesion removal for
> >> pain...blockage leaves you no choice, just
> curious.
> >> --- Robin <rmasse2333@aol.com> wrote:
> >> > Dear Sally
> >> > I am on the quilt, I am under Robin Massengill.
> I
> >> > did respond to your
> >> > survey. I have had 3 c-sections, hysterectomy
> & 1
> >> > laparotomy for
> >> > adhesions & 4 laprascopic surgeris for
> adhesions.
> >> > My last 2 surgeries
> >> > being by Dr Korell in Germany. I wish I could
> go
> >> > back to him, but I
> >> > just don't have the finances to do so. We are
> >> > literally on the brink of
> >> > bankruptsy. Last night, I finally took a
> sleeping
> >> > pill. It worked
> >> > pretty well, I only got up 2 times instead of
> 4-5
> >> > times. But, I woke up
> >> > hurting really bad, inspite of the meds I am
> on.
> >> I
> >> > have just really
> >> > been depressed & hurting the last couple of
> weeks
> >> &
> >> > I guess it finally
> >> > had to come out. I have a very supportive
> family
> >> &
> >> > my church (when I
> >> > feel up to going) is supportive too. Thanks
> for
> >> > your encouragement.
> >> > Robin Massengill
> >> >
> >> > At Tue, 17 Jul 2001, Sally Grigg wrote:
> >> > >
> >> > >Dear Robin, I know how you feel, in pain,
> >> > depressed, and worthless. But you're
> >> > >not. You valuable, and wonderful. The pain
> will
> >> > someday be gone. They are
> >> > >doing so much research that someday soon we
> will
> >> > wake up and there will be
> >> > >news of a medical breakthrough. It's coming, I
> >> can
> >> > feel it. Hang on. Tell us
> >> > >all about your trip to Germany. Every little
> bit.
> >> > I'm really interested. Have
> >> > >you seen my survey? Is your story on the
> quilt?
> >> > There were four Robins so I
> >> > >didn't know which one was you, if any.
> >> > >
> >> > >I know its easier to say cheer up, and its
> >> > meanignless, but please. Do you
> >> > >have any support group where you are? Family,
> >> > friends, your church, or a group
> >> > >just for people in pain or who are depressed?
> All
> >> > of those can really help.
> >> > >Please know that we all care and we're here
> for
> >> > you. Love, Sally Grigg
> >> > >
> >> >
> >> > To remove yourself from the
> >> adhesions@adhesions.org
> >> > mailing list please go
> >> > to the unsubscribe form at
> >> > http://www.adhesions.org/forums/listcmds.htm
> >>
> >> http://www.adhesions.org/forums/listcmds.htm
> >>
> >> http://www.adhesions.org/forums/listcmds.htm
>
> http://www.adhesions.org/forums/listcmds.htm

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