Re: NASAP info?

From: Hchalm@aol.com
Sat Jun 30 22:36:24 2001


Dearest Cheryl:

When I was desparately looking for a doctor over a year ago, after finding out I had adhesions, and couldn't find a doctor to help me with the horrendous pain I was in, I stumbled upon the NASAP site. Once in the sight I saw the panic button and filled out the form telling them that I was in terrible pain, had ARD and what that was, etc., and sent it on its way. I heard back from a representative from the sight that they would assist me in looking for a pain specialist. After doing so, I also found the ASAP site and filled out their pain form and e-mailed it to a state representative for my state. The next day I heard back from the ASAP site that I could give her a call and she would help me find a pain specialist. I never had any dealings with NASAP again, as it is mostly for assisting those in Canada, and I was referred to a wonderful pain specialist in Virginia from the ASAP site who I have been seeing ever since.

I do not think ARD is listed in their site at all, as it is not listed in ASAP either (seems our disease is an unknown disease to both sites until hearing from me), but not enough of us have gone to either site, it seems, for our disease to be listed. It would be nice if we could change that!!!

I have not browsed through the NASAP site since last year to know exactly what it is all about, I only posted it for those that are from Canada and were in desparate need of a pain specialist, as I stated, there is a PANIC BUTTON THERE to keep pain patients from commiting suicide, and at the time I was browsing the site that was all I was interested in.

Perhaps a copy of the IAS News Letter should be sent to their site also to enlighten them about our disease, and it could be listed along with all the other diseases that are hard to diagnose and patients have a difficult time finding adequate pain medication for. I'll add it to my list of who to send the IAS News Letters to.

In Friendship,

Helen Chalmers


Enter keywords:
Returns per screen: Require all keywords: