Re: PLEASE...Share types of discomfort and pain that adhesions can cause...

From: Millie (milliem@citlink.net)
Tue Jun 26 20:38:55 2001


Colette and Rose, Let's not forget the losing weight because you can't eat. Just what I need. I lost 3 more lbs. Down to 102. Gotcha on the part about the stool. Only here, I'm to the point of almost doing nothing. Also the anger, depression, and inability to sleep, along with such pain & pressure that you walk , or crawl on the floor, instead of sleeping. Today I was told AGAIN it's irritable bowel. Nobody , I guess had heard of adhesions. THEN they give you medicine which, of all things.... slows the bowels down. Sort of insult to injury. Sick of being told IBS, the old "all in your head, sweetie" line of bull. Oh, yes... being bounced back & forth between these Drs. - will make us get motion sickness. HMMM... another diagnosis. :0( Millie

>----- Original Message -----
From: "Colette " <anonymous@medispecialty.com> To: "Multiple recipients of list ADHESIONS" <adhesions@mail.medispecialty.com> Sent: Tuesday, June 26, 2001 10:48 AM Subject: Re: PLEASE...Share types of discomfort and pain that adhesions can cause...

> Hi Rose!
> What you wrote is very well said thats exactly how i feel!
> i could'nt say it better myself! I know i'm not preggers cause i have
> nothing left either lol! So thank you for describing how i feel:0.
> Love ya Colette
> >
> >OH, oh, pain, how you discomfit me, let me list the ways:
> >
> > - can't hold my p.
> > - catch in my hip
> > - muscle cramps down my leg
> > - spasms in my lower back
> > - first too much sh--, then, oh then, the cramping and then - none
> > - constant pulling, hot pain in my lower right pelvis
> > - nausea
> > - swelly belly - can't be preggers, nothing of THAT left in there
> > - nagging low level all-the-time throbbing in the belly button area
> > - need more sleep than a new-born
> >- gain weight when you can eat (your body is in starvation mode from
> >when you can't and sucks up every ounce of calories you choke down)
> >- lose weight when you can't (so now 'they' think you have an eating
> >disorder)
> >- eternal search for a pain medication regimen that gives some kind of
> >life
> >
> >to continue with the saga, let us show the ways we pay:
> >
> > - doctors telling us it's all in our heads
> > - psychiatrists referring us back to those same doctors cause it's real
> > - family, co-workers and friends disbelief and avoidance
> >- continual stress dealing with uneducated ER personnel, physical
> >therapists, etc.
> >- phone calls, letters, e-mails to insurance carriers trying to get
> >proper care.
> >- depression, loss of self esteem, suicidal ideation and
> >anti-depressants that don't do anything for the underlying cause.
> >
> >Phew.....what a life!
> >
> >kcmo rose
>


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