I don't know if I have talked with you before or not. But, I read where you said you had terrible problems with your bowels and bladder. The only thing I can say to you is proceed with caution. Do not let surgeons cut on your bladder or your bowels. I had severe bladder problems as well as some difficulties with my bowels. I went to see a very good uro-surgeon who I felt could handle my problems. It turns out that rather than having to have bladder surgery they could have taken care of the adhesions that were wrapped around the bladder. Because of all of this I now have no bladder and must live with a urostomy that causes me many problems for the rest of my life. Adhesions cause many, many different problems. You would be so amazed. If you have more questions come to this site and ask others if they suffer with similar difficulties. I am sure you will find others who have the same problems.
-- Karla>----- Original Message ----- From: "Kathryn" <PocaNC@aol.com> To: "Multiple recipients of list ADHESIONS" <adhesions@mail.medispecialty.com> Sent: Tuesday, June 26, 2001 4:24 PM Subject: Re: PLEASE...Share types of discomfort and pain that adhesions can cause...
> At Tue, 26 Jun 2001, Chrissy492@aol.com wrote: > > > >Hi Helen, > >Sharing my pain ............. > >I wake up each day with a smile on my face so that the pain won't know that I > >feel it. Silly huh? Like a mind game for the body. Some days that smile > >helps. My pain feels as if a hand has crawled up inside of me and keeps on > >pulling and twisting everything inside of me, tighter and tighter the grip > >gets. Then I have those wonderful knife pains that shoots up my rectum and > >vagina (sorry for being so blunt) I'm in a car - driving...the pain gets so > >bad I can't feel part of my left leg anymore. Now my right leg is doing the > >same thing. The pain gets so bad, my lower constant back pain, my left lower > >side pulling, stabbing, twisting pain - I vomit. When I finally feel my leg > >come back to life, I vomit. The pain doesn't run down my whole leg, it stops > >almost at the knee cap. If I eat or drink too much, I feel as if my whole > >insides are on fire and I just want to explode. I can't say yes to future > >plans, just lets see how I feel that day. When the day comes, I go to that > >birthday party or social gathering - and for 2-3 days after that, I'm laying > >around the house in extra pain, but I have a smile on my face because I made > >it to the party or social gathering. When I can't make the party, my heart > >hurts. I feel as if I've let down the person or people who were expecting me > >to come. What helps, are people like yourselves. You know what my feelings > >are when I say - it hurts - you have the same hurt. When I'm down - you lift > >me up. If I have a question on a medication or some medical lingo - you > >educate me. Thank God for all of you..........and may we all see pain free > >days soon and forever. > >With hugs and love, > >~Chrissie xo's > > -- > I want to thank you folks for sharing these symptoms and problems. This is my second day on this website and I have learned a lot. > All these things I thought were just weird things happening to me for unknown reasosns are now crystal clear as to why they are happening to me. > I am also diabetic so I didn't know for sure why I was having such terrible pain but now I can understand. > Understanding makes dealing with this so much easier. > I plan to visit this site regularly to learn as much as I can and to get help and also to hopefully be of help to some of you. > My pain isn't to the point of needing pain meds yet but I am having terrible problems with my bowels and bladder. > My doctor tried me on a daily mild stool softener and I thought I was going to kill me with cramps. Has anyone found > anything that really helps with this as far as diet, excercise etc. > Thanks. > Kathryn >