>>>----- Original Message -----
>From: "Bev" <bnb@new.rr.com>
>To: "Multiple recipients of list ADHESIONS"
><adhesions@mail.medispecialty.com>
>Sent: Wednesday, June 20, 2001 4:07 PM
>Subject: I wouldn't want the ' anonymous ' nurses job for nothing!!
>
>> An open letter to all my sister and brothers of ARD!
>> Allow no one to pull you down, darken your days or gain your negative
>> attention! You have enough to deal with without allowing another person
>> in the medical society to dampen your spirits on YOUR OWN society, how
>> dare she!
>>
>> You get enough of that same crap when you do have to go see HER in the
>> emergency room..and trust me on this one my friends..THIS nurse works in
>> almost every Dr.'s office and medical facility any of us has ever been
>> to, or will have to go to one day..LOL!
>>
>> May we rise above anger or frustrations not of our own making and
>> instead fill ourselves with the joy that TODAY "WE" do infact posses the
>> knowledge that everything we suffer in living wth ARD IS very real and
>> WE know why we suffer what we suffer...and it IS very real! If WE did
>> not have the IAS, each other and those within the fields of science,
>> research, AND many within the medical field opening doors for us to
>> educate ourselves, well, this nurse might be all we have going for us!!
>> OUCH! Talk about an ARD sufferer being lucky how would you like THAT
>> thought on top of ARD! LOL!
>> Everything this nurse is convinced is not real in ARD has simply passed
>> her by as she is way to busy to see what new things the world of
>> medicine opens up each and everyday..
>>
>> Being a nurse myself, I am so relieved that I have never been in the
>> position this nurse has placed upon herself, or thinks has been placed
>> on her! Which ever...
>>
>> It is obviouse to all who suffer the very painful and debilitating
>> symptoms of " Adhesion Related Disease " that this nurse offered an
>> opinion based on her understanding of ARD. More,her LACK of
>> understanding of ARD. This type of "smoking screening " comes from a
>> severe lack of education and awareness of ARD within her nursing
>> practices. This lack of education and awarenes makes her oan UNinformed
>> and INeffective medical "proffesional" with an opinion on something she
>> knows nothing about..so that actually would make her an uneducated,
>> ineffective opinionated unproffesional! Yeah, thats more like it!
>> To "define" that statement:
>> An UNinformed and INeffective medical " unproffesional" is one who does
>> not pursue continueing education enough to keep themselves aware of new
>> technologies that are acurring within the medical arena everyday, being
>> illiterate to the many progressive medical techniques that are radidly
>> changing within her field of choice and unfortunately, as is obvious in
>> this " nurse's " letter, she is profoundly unaware of research advances
>> and constantly newly discovered diseases! Yup..that defines her alright!
>>
>> Now, on to more of my observations of her letter, as I think she was
>> looking to educate us pathological liars here on the IAS..:-)
>>
>> We all know that nurses and Dr.'s are NOT required to complete any
>> continueing education courses or study of current sciences within the
>> medical field, as is evident from her letter here, so we do have THAT
>> issue confirmed now by a person within the medical field itself, so we
>> have THAT going for us know! LOL! WE all know this from experience as
>> well, but it shows us that many nurses within the proffession still have
>> a way to go in offering quality nursing interactions with their
>> patients. Nurses like THIS one offer trusting patient's unfortunate
>> experiences, to say the least!
>>
>> A medical care provider who is uneducated in recent medical discoveries
>> and their treatments is actually dangerous to a patient to be sure..but
>> the world is filled with them and NOT all persons within the medical
>> arena are closed minded and opinionated on subjects they know nothing
>> about..and if you re-read her letter, it is almost funny to think that
>> she thinks she is telling us something profound when all she
>> accomplished was to make herself standout foolishly and very uneducated
>> to say the least!
>>
>> It is sad for me to see a person of my proffession take such a harsh
>> stand on a subject she knows nothing about and even sadder that she had
>> an opinion on it!
>>
>> I am so blessed as a nurse, not to have to be like this nurse, as she
>> has obviously elceted herself to be the " Judge and Jury " of all
>> persons who suffer here on earth! A day doesn't pass me by that I don't
>> count another blessing!! LOL!
>>
>> With an assignment of this magnitude, she IS to busy to secure further
>> education that might broaden her horizons within the medical field and
>> possibly actually HELP a suffering person through a crisis..she can't do
>> that, she is busy " stumbling " around the wide world of the net finding
>> medical problems to judge, add THAT to her having to perform those same
>> duties in a medical facility on top of it! Blows my mind to think how
>> hard she works..
>> Now that she has the IAS covered, she is probably stumbling over to the
>> "AIDS " group and slashing them with her profound wisdom as medical
>> judge & jury..something like this:
>> " All YOU people with AIDS are homosexuals and come in to the ER looking
>> for attention and sympathy because your going to die! Well, WE have no
>> time for you as it would be a waste of our time to treat you anyway
>> because your dying anyways and its your own fault! "
>> Then she can move on to the " Cirrosis of the Liver " group! Picture
>> this one,
>> " All of you are yellow from poisoning your livers from drinking to much
>> and you want to come into OUR emergency room for treatment so you can
>> live longer and go drink more..WE know all cirrosis is from alchoholism,
>> WE are not
>> stupid!
>> Oh oh, here comes a lady with "CPP"..chronic pelvic pain! And here comes
>> the judge!! " What do YOU want in here? " WE all know that you people
>> who complain of pelvic pain are all premiscouse and if you didn't fool
>> around so much you would have those pelvic problems! " What?" "I don't
>> care if your a nun, I KNOW what I am talking about, it's MY job as a
>> nurse to express my opinion on what I know even if I don't know it and
>> just think I know it..it's called TEACHING if you didn't know!!"
>>
>> I can understand angry reactions to this person and her harsh opinion of
>> the sufferrings of ARD, but I have to shake my head in saddness at the
>> reality of what she really represented in her most lacking
>> communication, what she did say was actually not what she wanted to say
>> at all..not at all! She didn't tell an ARD sufferer anything they were
>> not acutely aware of within much of the medical society in responding to
>> an ARD sufferer seeking medical intervention and understanding! What she
>> DID accomplish in her letter was to substantiate what we knew to be true
>> within much of the medical community..they don't have a clue about ARD!
>>
>> Her letter DID say a lot of true things actually..let me translate her
>> letter for you this time though...
>> Her letter here is telling the WORLD what WE, who suffer the pain,
>> indignities and disabling affects of ARD, have been trying to say all
>> along! There exists a serious lack of effective, informed and quality
>> medical intervention within the medical society today for ARD! She also
>> spoke volumns that showed just how little awareness and education of ARD
>> actually exists within the medical society! Her words clearly show a
>> great deal of frustration in her being put upon by a person who
>> complains of pain yet shows none of the symptoms she has been trained to
>> respond to, if you don't see it, hear it or feel it, it cannot possibly
>> exist..closed minded? Yes, it IS closed minded for sure..they choose NOT
>> to learn something new that simply might be real enough to make a
>> difference in another persons life, and in this proffesion, that would
>> mean the life of a sufferring human being! To be closed minded in this
>> proffesion is one really dangerouse trait to be sure! They are closed to
>> being progressive, and they stumble around on the net looking for ways
>> to make themselves feel good, strong, intimidating, better then thow
>> attitude,it's easy to be a bully, and the words of this nurse, as
>> written in her letter on the IAS, if written in a chart or spoken to a
>> patient in her medical facility, would csonstitute abuse and
>> deiralection of proffesional duty!
>>
>> In MY opinion, she appears to be non-progressive in her field. She
>> really presented herself as lacking in her awareness of this disease, of
>> her unwillingness to learn about it, to understand it so that she might
>> offer someone who presents with these symptoms a positive experience
>> with her as their nurse, she showed a serious lack of compassion for the
>> suffering of our world, she does not exihibit the ability to be
>> effective in helping a patient who unfortunatly would be assigned to her
>> care, she appears to be uwilling to use this sight as a mode of self
>> education and betterment of her proffesion, she represents a lack of
>> medical knowledge and compassion to touch the lives of sufferring people
>> in a positive way, and it cannot be just the suffering of ARD patients
>> she deals harshly with, I am of the opinion she treats all people , ill
>> or not ill, in this manner!
>> If we, on the IAS site, think we have been judged harshly by her in our
>> suffering of ARD, and we have, lets take a look at one last patient
>> encounter with her...I think we will see that being "stumbled " on by
>> this nurse is better then an actual encounter WITH NJJ,( Nurse, Judge &
>> Jury )
>>
>> Lets see who is coming into NJJ's emergency room now!
>> The para-medics are bringing in a man who lives on the streets, has
>> apparent psychological issues, very poor hygeine, hasn't eaten for days,
>> has open sores covering his body, suffers from post tramatic stress
>> syndrome as the result of serving in the armed forces of our country, he
>> is screaming and combative as he is still fighting the war in his mind,
>> has no job or money, missing teeth and bleeding gums, tracks on his
>> forearms from shooting up, obviously missing a leg, but what happened to
>> it may never be known, he screams he is in pain, but pain is subjective,
>> he screams he wants to die, to be left alone, ...and if you think he has
>> it bad now..look who just walked into his room with her clip board
>> a..Nurse Judge and Jury!!
>>
>> If she hasn't accomplished anything else in her letter to the IAS..she
>> HAS written a beauty for me to add to our National Press Kit,
>> information packettes to the Surgeon General, to the Dept. of the
>> United States Health and Human services and everyone else who will be
>> confronted with the awareness that indeed this mindset against an ARD
>> sufferer exists within the medical community today..she said it all and
>> said it well!
>>
>> Why not print out her letter to take with you into any medical
>> appointment you have regarding your ARD symptoms and IF you receive this
>> type of care from a nurse there..show them you have the letter they
>> wrote to the IAS ?? LOL!
>>
>> Education of ARD for YOUR medical care provider is paramount in
>> overcoming this type of injustice within our medical society today!
>> Demand their time in discusssing all your issues and questions and
>> demand they explain everything to you that you have asked them, know
>> what to expect from them by educating yourself and being an informed
>> consumer, because if YOU don't, do you really think THEY will be?
>>
>> To laugh at her letter is the ultmate putdown of her passing herself off
>> as a nurse and the only response she deserves for her hiddious
>> presentation of herself as a nurse! Shame on her...a wanna be to be
>> sure!!
>> LOL!! LOL!!
>> By now she is stumbling through the Wild World of the Internet and will
>> never be back to even read our responses to her after all, she has a
>> whole world to judge....
>> As a sicko though, she may be feverishly checking back into OUR IAS site
>> to get her high off upsetting suffering people...either thing isn't
>> worth our time and what energies most of you have left to expend..don't
>> expend it on something like her !
>>
>> Peace and blessing to all of you always..
>> Your sister in ARD..
>> Beverly
>>