I was called for an interview for a management position and despite the really crappy level of pain I have been in, decided to get all spiffied up and head out into the corporate environ again to talk with a mega telecom firm.
I realized halfway through the interview with the General Manager of a billion dollar company that I was sitting in a little puddle of piddle.
I guess I needn't tell you that had it not been for the fact that I had a raincoat with me I would probably still be sitting there, waiting for him to leave the office first. Be that as it was, I have a 4 pound "tumor" (non malignant but now inoprable)and adhesions combined, resting in the lower pelvis, where the uterus was. It must have grown another few ounces or somehow dropped a milimeter lower, because it is now riding on bladder like a broncing buck and regardless of how I curtail my fluid intake when I know I have to got out, I have NO control over "things."
Is there anyone out there under the age of 90 who has found themselves with this rather pissy affliction thanks to ARD?? I am only 46 and not ready to go the Depends route. I have had 16 operations and somehow feel that this isn't an option. I know that a "nip and tuck" of the bladder is great for women who have cystoceles (dropped bladders or weakened bladders) but because they cannot remove the mass of gunk inside me they won't operate and cause more adhesions just to have the mass eventually fall down again.
Needless to say, after that interview I have been on no others. I cannot even imagine schlepping off to work every day carrying a diaper bag.. I know I sound like I am being trite but remember, I've had my mass for 15 yrs and until now, except for unbearable pain and multiple obstructions, my mass was good to me. Besides, if I don't try to make light of this I will fall into a depression again, and believe me, that's not my first choice.
I've enjoyed talking with all of you who are reaching out to me for help in finding either pain management doctors or surgeons who specialize in ARD in the Phila. or the Tri state area. I hope you will keep on writing. I am working on a package of info to distribute to surgeons and pain specialists in the state in an effort to introduce them to ARD and get them involved in this mess.
Meanwhile, please tell me........am I the only one who has this? If not, does anyone have any thoughts?
Love you all, Bev, haven't heard back from you recently...any more work for me to do? Hi Millie and Janet and Helen!
Ginny