Re: Seprafilm.....7 reasons NOT to use...and...and only 1 reason that

From: Sally Grigg (lostcst@mcn.org)
Sat May 12 13:30:46 2001


Dear Suze, Please don't feel ignored, or like nobody cares, we do care, its just that there is so little time each day to sit up and functon and so much time when I lay in bed in agony beyond belief, that I can't keep up with everything. I wrote Trace separately, and I was wrong, I had seprafilm in my last operation which was supposed to be laprascopic, but my bladder was cut so they had to do a full incision to repair and that's when they used the seprafilm, which thinking back I had heard of and asked for before the operation. Unfortunately, it didn't help me at all, unless it could hurt worse than this, and that thought terrifies me. Anyway, this board is just free form, and some people go away because no one answers. I try to answer, but its overwhelming. But I feel like I've gotten to know you and Trace and the other " Aussie " girls and I think of you and get a kick out of talking to you so far away. I can understand Trace not wanting to particpate, when she feels slighted and hurt. And I told her if she were pain free, as she seems to be, there's no reason for more stress, but please try to keep in touch. We need all points of view. And I for one, love to get your messsages. Love and blessings upon you, Sally Grigg

> Dear sweet trace,
> I can see how this upset you as it did to me as I read it also, The
> fact is everyone is different and different things help us all, what
> about saying 7 reasons to have it??
> I had seprafilm in my last op as you said, and with my liver still
> playing up with pockets of fluid and been inflammed its hard to tell
> yet where I will end up. BUT my surgeon didnt give me any ideas it
> would cure me in fact he said 1/3rd it works great for 1/3rd get some
> relief and 1/3 might as well not have used it . BUT it sure was worth
> trying it and I would try again tommorrow if necessary. I was cut
> open for my surgery, and when you think about it trace wasn't and who
> is the one pain free now??? Its not me so go figure.
> If seprafilm is that bad why is any doctors using it?? it can work
> and help for some!! I know trace did a lot of work and research into
> finding her doctor seems to me like she made a damn good choice to.
> I to like gloria have found posting on this site hard at times as you
> often get ingored and I know of others that have felt the same, and it
> seems to me if you try to give your story and what worked for you you
> get slammed anyway.
> I wish you wouldnt leave trace cause I for one know your help,
> knowledge, and support has got me to where I am today and that is
> having found a surgeon (through you trace) and finally at least having
> some hope now to getting a life back.
>
> Suze
>
> niko wrote:
>
>> My experience in Oz was totally different to this, obviously my
>> facts of real life are wrong. I have disconnected from this website,
>> as these sort of remarks upset me, when you try to help. Anyone can
>> email me privately at any time. Trace xo
>>

>>> ----- Original Message -----
>> From:Helen Dynda
>> To: Multiple recipients of list ADHESIONS
>> Sent: Saturday, 12 May 2001 1:09 AM
>> Subject: Seprafilm.....7 reasons NOT to use...and...and
>> only 1 reason that MAY help!!
>> BE WARY OF SURGEONS, WHO SAY THEY CAN APPLY SEPRAFILM
>> LAPAROSCOPICALLY!!! ||| Reasons NOT to have Seprafilm
>> used as an adhesion barrier: 1.) Seprafilm can NOT be
>> applied laparoscopically! 2.) Seprafilm has NOT been
>> approved by the FDA to be applied laparoscopically! 3.)
>> Seprafilm is brittle ( somewhat like waxed paper ) and
>> very difficult for the surgeon to use! 4.) Any moisture on
>> Seprafilm makes it sticky -- causing it to stick to
>> surgeon's gloves -- which also makes it very difficult to
>> apply! 5.) For all of the above reasons, the BEST surgeons
>> have decided to NOT use an adhesion barrier. 6.) Any
>> infection or inflammation within the abdominal/pelvic
>> cavity CAN cause MORE adhesions to develop! 7.) The way
>> each person's body accepts a foreign substance or adhesion
>> barrier IS DIFFERENT!! Some people are ALLERGIC to
>> adhesion barriers, like Seprafilm, Interceed and the NEW
>> Intergel gel adhesion barrier. I know of one person, who
>> is allergic to ALL three adhesion barriers!!! ||| ONLY
>> ONE REASON TO USE SEPRAFILM: 1.) The FDA has approved
>> Seprafilm for LAPAROTOMY surgery ONLY!!!!!!! THERE ARE NO
>> GUARANTEES THAT SEPRAFILM WILL PREVENT ADHESIONS FROM
>> FORMING ( de nova adhesions) OR RE-FORMING!!!!!!!
>>


Enter keywords:
Returns per screen: Require all keywords: