I am so happy that you finally found us. I couldn't believe my eyes when I found this site a year ago. There were actually people just like me. There were super people to ask questions to, as I was just diagnosed with having adhesions, had never heard the word before, and found myself sitting for days swallowing all the information I could regarding this "disease" that I had. I didn't even know that it had a name "ARD." You seem to be well taken care of by your doctor regarding your pain. My pain specialist did recommend to me that he would insert a morphine drip for the pain (that many people have had this done, and have gone on to live normal productive lives). I am not sure if I am ready for this yet; perhaps it would then hit a nerve that yes "I will be a chronic pain patient" the rest of my life and must rely on drugs to survive. I'm not sure I am ready to hear or admit this yet, but I have only had one adhesiolysis, nothing like what you have been through, so I have hope that there will be some breakthrough soon that will cure me and the many others that are suffering with this terrible disease.
May God Bless you and keep you strong. You have had a life time of pain and suffering, and I can only pray that one day there will be a cure and you can live your life to the fullest again.
Helen Chalmers