Dear Friends,
I guess everyone get's these letters, so here I am writing and hoping for
some comfort and help.
It's been a long few weeks, few months, few years. The doctors have just
figured out that I have adhesions, but there doesn't seem to be one single dr
out there who believes they cause pain or that is willing to do adhesiolysis.
So I continue to suffer. Things got so bad this past weekend I went to the
ER and complained of a backache just to get something for the pain. Isn't
that retarded? Why should I have to lie? Why can't they understand that this
pain is real?
I would love to get some adhesion pen pals. I am 38, have had a complete
hysterectomy 10 years ago, an appendectomy, my gallbladder is gone, I've had
ovarian cancer w/mets to the uterus and cervix which led to the hysterectomy,
and in total 13 surgeries in 15 years.
I am the mother of 5 children. 3 are mine and 2 are mine by marriage. We
have 2 grandkids with my step son and 3 grandkids with my daughter and
another grandchild by my next to youngest son.
I have the adhesions, CFS and Fibro, they are all inter-related I am told.
Please tell me I am not nuts that this does get better! I don't know how
much of this run around I can take going from dr to dr to dr going through
the same tests over and over again. I am afraid to eat because of bowel
obstructions (been hospitalized once for that and that was enough). I have
horrible backaches and migraines from the adhesions on my spine and now I
just don't know what to do. My family is afraid to say or do anything
because I am not the same woman I was. Adhesions are ruining my life.
If anyone out there understands where I am coming from I would love to hear
form you.
Missy