Re: Endo

From: Robyne Hinks (
Tue Feb 20 13:28:04 2001

Dear Ingi Some woman go through hell when they get menopausaal.If you go through forced men opause the symptoms CAN get worse i know I had a hysterectomy when I was 28 and then my ovaries were removed when I was 40. I had hot flushes so bad and insomnia that I was going through hell.I was real depressed as well. My GP put me on many types of HRT but the one that I had no side effects to was Climara 50's patches.He said it is not often that women get side effects fom these is because it delivers a constant low amount into your body all the time whereas with tablets you get a surge when you take the tablets.He Said forced menopause is usually worse than going through it normally.But he said that anyone like my sister that has had breast cancer that is eostrogen caused cannot go on any type of HRT and also women with endo problems it is advised to go the lowest dose or nothing at all.Love always Robyne.

>----- Original Message -----
From: Ingi Skaug <> To: Multiple recipients of list ADHESIONS <> Sent: Tuesday, February 20, 2001 11:20 PM Subject: Re: Endo

> Dear Trace (or Niko?),
> Thanks very much for your reply, and the links that I have read.
> I am prepared to go through menopause the quick and hard way after my
> ovary has been
> removed. Menopausal trouble is not a new thing in the history of
> humanity. Women have
> been going through it always. The trouble lasts as long as it takes for
> the body to get used
> to and ajusted to the lack of estrogens. The HRT is a very new thing,
> and suddenly
> everyone seems to HAVE to take it.
> I have an aunt who had total hysterectomy 37 years ago, when she was 40.
> She had a hell
> of a time for 3-4 months after surgery, but has been very healty and
> full of energy ever
> since. At the age of 77 she says that she keeps getting more and more
> energetic. The rest of
> my life is worth 3-4 months of temporary hell. I have had so much hell
> with the
> endometiosis and the adhesions it has caused. THAT gives me severe
> depressions. I have
> been severely depressed since I was 20, and I know that it is related to
> the endometriosis.
> I did take GnRH-analogues for 7 months once, and the hot flashes then
> did not really
> bother me much, although they appeared every 45 minutes lasting for 3-4
> minutes. The hot
> flashes were preceded with 1/2 minut of acute depression, but apart from
> that I felt OK
> mentally.
> But of couse, I would like to try to take some sort of repacement, if I
> can, but I am
> considering starting this maybe 6 months after removal of the remaining
> ovary. The pills that
> I am considering taking are called "Livial" and do not contain
> Raloxifen, but Tibolone. This
> is also a "SERM". It stimulates all estrogen cell receptors, but those
> of the endometrium and
> the breasts. It is supposed to give less hot-flashes than Raloxifen. I
> doubt that I'll even try
> the real estrogen. I don't believe I'll ever get rid of the
> endometriosis with real estrogen in
> my body.
> My remaining ovary produces follicle cysts constantly. And these cysts
> produce estrogen
> which again increases my endometriosis pain. I am currently in for
> puncturing and draining
> of cysts every 5 weeks. This is done through the vaginal wall. It is a
> nightmare that they
> keep coming back and never dissapear by themselves.
> Have you tried Livial?
> Do you think that some of your trouble might have been due to your
> taking HRT too early,
> or at all?
> Was your ovary removed endoscopically and whole, or cut up in parts?
> How do you feel today?
> I have the most loving husband and a miracle of a daughter who was born
> in Chengdu,
> China 15 months ago. From the bottom of my heart, I can say that I do
> not miss having
> biological children, and I would never have gone through all the three
> IVFs if I had known
> what a wonderful thing adoption is. I am also very happy not to have to
> pass on my genes
> for endometriosis to new generations, as I am pretty convinced it is
> genetically determined.
> I have many female relatives on my mother's side with the same trouble.
> I am so sick and
> tired of the whole idea of staying "fertile" when I am not. Just
> hearing the word, makes me
> want to puke.
> I am now considering having hopefully final surgery with Dr. Korell in
> Duisburg, Germany,
> which is not too far from Oslo. He seems to be the best there is as far
> as I can gather.
> Best wishes and good luck,
> Ingi
> At Tue, 20 Feb 2001, niko wrote:
> >
> >Hi Inge ;-))
> >
> >Yes, all my problems resulted from Endo. I have had chronic 4th stage
Endo for 10 years, however the Endo finally settled a few years ago, but just reoccured in my recent lapa. > >
> >I decided to remove my remaining ovary like yourself to rid myself of the
Endo. However, this is not always as easy as it sounds. Once you remove the second ovary you will be on HRT for the rest of your life, and there is NEVER any guarantees that this will stop your Endo. I found the search for HRT very frustrating, as I was allergic to alot of it. And of course you will feel menopausal. > >
> >How do I know this, well I had one ovary removed, then a hysterectomy,
then the other ovary. All because of Endometriosis. > >
> >I know that the decision is a large one, I had finished trying to have a
family, my Endometriosis was too chronic that it made me infertile anyway. Nonetheless !!! don't forget that it is totally irreversable, and peoples lives change. > >
> >HRT, well there is alot of worries about the long term side effects of
it. Please remember that there is products out there called "SERMS"... stands for special oestrogen receptor modulators, taking this kind of HRT, reduces your cancer and other risks. > >
> >I am happy to forward any further information you need ;-)) I think you
will be surprised at how many adhesion cases result from Endo. It's one of the leading causes. > >
> >You will probably have a few consecutive operations to remove any ovary
remanant, as this is very common too. > >
> >Please take care !!!!! And decide wisely,
> >
> >Trace
> >xoxoxox
> --
> Ingi,Oslo

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