Re: Looking for Support

From: Colette (
Tue Feb 20 08:55:32 2001

At Tue, 20 Feb 2001, niko wrote: >
>Hi Millie,
>Aw Millie, I was mortified to hear of your treatment. I know it's hard to
>stay strong at this time as well, but maybe your partner could ring the
>surgeon and ask EXACTLY why the operation was so extensive? At least this
>type of answer could set your mind at ease. Adhesions can most certainly
>cause a blockage, but also know, that the reason your body is reacting in
>this way could be from a variety of valid medical reasons.
>Please know that you are not alone. Please let us know where abouts you are,
>so some members here can direct you to someone who may be a little more
>knowledgeable and compassionate. You are worth it.
>Your pain pal
>Trace xo

>>----- Original Message -----
>From: "Millie" <>
>To: "Multiple recipients of list ADHESIONS" <>
>Sent: Tuesday, 20 February 2001 12:30
>Subject: Re: Looking for Support
>> Dawn
>> I had a TAH on Jan.29. I am worse instead of beter. She removed everything
>> but the right ovary, and when I asked her how everything looked, she said
>> pretty good. So why take them? I am horrified that I let this happen. I
>> under the impression that she wold look for endo, do something to clean
>> endo up, and look for adhesions, and maybe take the left ovaryif it looked
>> bad. I am so upset that I get to a near- catatonic state. I am in my own
>> litle world. It's rough for my husband, even though he doesn't say much. I
>> know he's angry at how she treated me. I am losing weight,too. From 115
>> about 101. Because I want to eat. I'm starved, but it feels as if I've
>> the urge. Like the bowels aren't going to work again. Did you ever have
>> problem? Did you ever have a blockage from adhesions? It feels as if even
>> loose stool won't move. I hurt all the way across above the incision. It
>> feels as if whatever organs are left, are of painful fire, and like
>> welded together. After 3 weeks, there should have been improvement. And
>> week, she laughed me off, so God knows what's wrong in there, now.
>> Millie
>> /

>>> ----- Original Message -----
>> From: "Dawn Craft" <>
>> To: "Multiple recipients of list ADHESIONS"
>> <>
>> Sent: Monday, February 19, 2001 11:38 AM
>> Subject: Re: Looking for Support
>> > At Sat, 12 Feb 2000, Christy wrote:
>> > >
>> > >I have been an adhesion sufferer for almost 12 years and have felt
>> > >until I found this web site.
>> > >
>> > >I have adhesions in my uterus, around my pancreas and my liver and have
>> > >already had 5 surgeries to help the problem but the pain is back and so
>> > >are the complications.
>> > >
>> > >Is there anyone out there who may be able to help give me support when
>> > >the pain and depression gets to much to bare?
>> > >
>> > >Hope to hear from someone soon,
>> > >Christy
>> >
>> > --
>> > Hi my name is Dawn I have adhesions from my hystorectomy in 1994 I have
>> had 12 operations and I am 31 yrs. old.I have been searching for anyone
>> who goes through what I do.Only 2 of the operations have been for the
>> adhesions my wonderful doctor has told me the last one was all he could do
>> that my can not go through anymore.I have to beautiful daughters 10 and
>> There is no more playing with them or acting silly with them like I use
>> too.I hurt alot I am losing weight left and right. I read some of the
>> messages on this board I hope its okay to write and talk to someone here
>> so frustrated just cleaning my house and taking care of my family has
>> very hard for me.My oldest daughter is about to turn 13 and my tolerance
>> her atitude is very short. I love her so much and it is very hard to
>> control my temper when I hurt so bad.I go outside alot now to collect
>> when she gets on one of her kicks of why not why not.I have always beeen
>> able to control my temper bu!
>> > t it is getting harder everyday. Like I said I read alot of these
>> and just needed someone to talk to.Your letters help me know I am not
>> and others have the same pain and frustration I do.
>> >

 Hi my name is Colette
       I had a hysterectomy on dec. 1,2000. And i feel worse than before the surgery. I too have lost alot of weight because i'm afraid to eat i'm litterally starving myself to death i can't help it i'm so afraid to eat. My husband is great but i know its hard on him too i'v had so many problems for so long. I have three kids my oldest boy is 15 and my middle boy is 12 and my daughter is 3. I really have a hard time dealing with them because of my pain. I want to beable to be mom again!My time is so consumed trying to find someone to help me these dr are useless. Years ago i was diagnosed with IBS and this is not my IBS i do know the difference. I literally cannot go to the bathroom. I'v tried diets , metamucil which makes it worse for some reason. all kinds of laxatives nothing milk of magnesia used to give me the runs not no more i'm getting so tired of this so i do know how you guys feel. And it feels nice not to be alone on this thank you everyone here!!!!

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