Re: Support Group...

From: Roni Rospert (
Thu Feb 8 06:32:44 2001

At Sun, 4 Feb 2001, Tami Dana wrote: >
>I was wondering if there are any people from Ohio who would want to have
>a support group here? To look for surgeons that will help with ARD and
>just to talk to eachother when the need arises (which for me is often).
>If anyone is interested, please email me.
>Also wanna say that I LOVE this website and it has helped me SO much in
>realizing that I am not alone with all the problems I have and all the
>pain I suffer. I have to say that after reading MANY of your messages
>about not getting help with your pain from your doctors, I feel quite
>lucky, I have a doctor that I have been with for almost 10 years and he
>truly cares about me and he believes me when I tell him that I am in
>agonizing pain, he does his best to medicate me and make me as
>comfortable as possible. Like I said, I feel VERY lucky and blessed
>that I have a physician who cares and believes his patients. I feel so
>bad for those of you that suffer and cannot get the medication that you
>need =(
>I wish that those doctors could feel the intense pain that we feel just
>from simply having a bowel movement, or trying to sleep all through the
>night without waking up in horrible pain, and doing the "normal" things
>in life.
>Even with the pain medications I recieve, I still do not sleep all
>night, I wake up every couple of hours in severe pain, I have to get up,
>I cry, take more pain medication, and I do ALOT of praying... I think
>my worst times are when I am up in the middle of the night, because I am
>alone (I dont want to wake anyone up), isn't it an awful feeling to be
>alone when the pain is SO bad? For me, it is...
>I have met quite a few people here on this website, and I consider you
>all my friends, so remember...if you need anything, or just need to
>talk, I am here. =)
>((Hugs)) to you all, Be blessed.
>With love & understanding,
>Tami Dana

I'm from Ohio too, please email me.


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