Re: Support Group...

From: Tami Dana (
Tue Feb 6 01:40:36 2001

At Mon, 5 Feb 2001, karen wrote: >Thank you Karen and Jenny for your replies, I emailed you both =)
*Big hugs* Tami

>I am from Ohio as well. Please e-mail me.
>At Sun, 4 Feb 2001, Tami Dana wrote:
>>I was wondering if there are any people from Ohio who would want to have
>>a support group here? To look for surgeons that will help with ARD and
>>just to talk to eachother when the need arises (which for me is often).
>>If anyone is interested, please email me.
>>Also wanna say that I LOVE this website and it has helped me SO much in
>>realizing that I am not alone with all the problems I have and all the
>>pain I suffer. I have to say that after reading MANY of your messages
>>about not getting help with your pain from your doctors, I feel quite
>>lucky, I have a doctor that I have been with for almost 10 years and he
>>truly cares about me and he believes me when I tell him that I am in
>>agonizing pain, he does his best to medicate me and make me as
>>comfortable as possible. Like I said, I feel VERY lucky and blessed
>>that I have a physician who cares and believes his patients. I feel so
>>bad for those of you that suffer and cannot get the medication that you
>>need =(
>>I wish that those doctors could feel the intense pain that we feel just
>>from simply having a bowel movement, or trying to sleep all through the
>>night without waking up in horrible pain, and doing the "normal" things
>>in life.
>>Even with the pain medications I recieve, I still do not sleep all
>>night, I wake up every couple of hours in severe pain, I have to get up,
>>I cry, take more pain medication, and I do ALOT of praying... I think
>>my worst times are when I am up in the middle of the night, because I am
>>alone (I dont want to wake anyone up), isn't it an awful feeling to be
>>alone when the pain is SO bad? For me, it is...
>>I have met quite a few people here on this website, and I consider you
>>all my friends, so remember...if you need anything, or just need to
>>talk, I am here. =)
>>((Hugs)) to you all, Be blessed.
>>With love & understanding,
>>Tami Dana

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