I have painin the exact areas that you are talking about. Three years ago I had an ectopic pregnancy on my left side. We were trying to save my only fallopian tube so the doctors gave me Methotrexate to dissolve the pregancy. That about killed me because I am totally against abortion and I felt like I was killing my baby. I know that we would of both died and have dealt with that. Anyway, about a 2 1/2 weeks after all the injections were over, I was still experiencing some horrible pain. They said I had a huge cyst on the left ovary. They wer going to do a laproscope and take it off. I woke up with a laparotomy. I was covered in adhesions. They cleaned me out. Eleven months later I was in the ER with pain in the same are and what they thought was a hemmorrhagic cyst. It ended up being my fallopian tube was full of fluid and curled up and had attached itself to my bowels. The doctor thinks maybe another tubal pregnancy may have caused the swelling in the tube. Then with in 7 months, I had pain in the same area again. Pain in the left lower quadrant and in the groin area. Finally after 3 months in February 2000, they did surgery. It was adhesions again. They removed a soft-ball sized mass and this time they had to remove 3 inches of my colon too. Two weeks after the surgery, I actually had one week of feeling good. Then the pain returned. There was another cyst on the left ovary. We tried hormones to shrink it but it didn't work. I had endometriosis real bad too. Not only was the pain in the lower left side, but I kept telling my husband that my butt hurt. And I had pain down the back of both legs. So finally I had had enough and told my doctor I wanted a hysterectomy. I wanted an end to the pain. SO June 16,2000 I had a total hysterectomy. My docotr said I had the worst case of adhesions he had seen in his 10 years of practice. Also the adhesions were wrapped around my rectum and had bent it down at a 45 degree angle. I really thought it would be over with the hysterectomy and all. But I never fully got rid of the pain. Of course they said it was that I was healing and all. I have been in bed now for 2 weeks with horrible pain in the exact same spots. Yes I hurt in the labia and vagina areas too sometimes. Mostly in the groin and lower left side. I know what it is again. I am going to the doctor on Tuesday. We will see what they decide to do. I just want relief. Pain meds don't do it. Hang in there and be persistant. I got some real good advice from this board. I was told to educate myself on the disease so it will help me when I talk to my doctor. That is exactly what I have done. So now I am going in prepared. I can now help in the planning of whatever treatments we decide to do. Don't lose faith. There are still some good doctors out there. Have confidence in yourself too. It is not in your head and you are not alone. If you need to talk or vent, you have a bunch of good listeners who understand. Feel free to email me privately too if you want. Take care and keep your head up! I am learning that if you let it get the best of you then you are already defeated. You will win!
Lots of love and hugs,
Jenny
At Thu, 25 Jan 2001, karen wrote:
>
>Hello,
>I am new to this forum, but have found that I have a lot of the symptoms
>that are being described. I have had pain in the left lower quadrant
>and groin for over a year now. Initially they thought it was a hernia
>because it radiates down my left leg. Then when on to find I had 3 left
>ovarian cysts. They supposedly went away on their own, but still had
>pain and a full sensation in that area. My gyn suggested a laparoscopy
>which found that I had endo (said it was not severe), my ovary and tube
>were attached to the bowel also, these were lysed. Then the gyn
>suggested Lupron for the endo, this is a medication that puts you into a
>"medical menopause" in order to stop estrogen production thus stopping
>endo growth. I had five shots and still experienced the pain in the
>left side, however, no period symptoms such as the pain and bloating and
>cramping. After she put me on the pill, which I do not tolerate, so
>needless to say, I stopped. Still having the pain she sent be back to
>the general surgeon and we were at the hernia thing again, however, he
>could not feel a bulge, but says this is classic groin/thigh pain for a
>hernia. My periods have resumed since the Lupron has stopped and they
>are worse than ever, stomach distension, cramping, diarrhea,
>constipation, etc. Called the gyn again and she said again that she
>could fix my periods, but the diarrhea and constipation and pain I would
>have to see the family doc. Did that, he says he thinks it's gyn
>related, until he talked to her and then they sent me BACK to the
>surgeon who I saw today. He still thinks hernia, but also is thinking
>gyn. Have pain and burning sensation, that is low to into the abdomen,
>hurts more with standing, lifting any activity. Also have pain in the
>labia. I have scheduled an appointment with a new gyn that I am seeing
>on wednesday. The general surgeon is suggesting another lap from the
>gyn, but also suggested that he sit in on the surgery and then do a
>regular surgery to r/o a hernia (that is the only way to find out if it
>is indeed hernia, no diagnostic test to determine this!). Needless to
>say, I am fed up with going from dr. to dr. The pain interferes with
>everyday life and is taking a toll on my mental and physical health. Not
>to mention I am unbearable to live with at times (don't know how my
>husband does it). I am beginning to think I am crazy. I have no
>problem with the repeat lap, but the actual hernia surgery to r/o that
>problem is bothering me. Anyone else have pain in the thigh, labia
>groin. The pain has been localized in the left lower quadrant for over
>a year with the exception of the period pain. Also don't think I've
>come all the way out of the Lupron, still have some hot flashes, no sex
>drive at all, very moody (of course that could be because of all of this
>frustration as well). Anyway, didn't mean to drag on...but I need to
>talk to someone else who has this pain, until you have it you just don't
>understand. Any advice/comments would be greatly appreciated. Thanks
>for listening....
>Karen