Re: ?'s about adhesions(please help)(Kathy)

From: wendy (anonymous@medispecialty.com)
Wed Jan 10 07:20:50 2001


Kathy, My gyn does believe that is what was causing my pain, she removed as much as the adhesions as possible. I really don't remember much of what she said. I know my adhesions were binded to my uterus and ovaries, and other things but I can't remember. I was to out of it. I am just really scared that they will return and I will have to have future surgeries. I wish my appt. was a lot sooner so I didn't have to wonder so much. I am really glad my gyn and I decided to go ahead with the laproscopy. We would have started treatment with a med that I didn't even need.

At Tue, 9 Jan 2001, Kathy Luchin wrote: >
>Dear Wendy:
>
>I know what you went through. I went a week with ruptured appendix. I
>didn't have an abcess because they left the incision open but some nasty
>stuff was in there. Needed a lot of antibiotics,etc.
>
>You need to ask your gyn if they have ever done a laparoscopy and lysed(cut)
>the adhesions. I know of only a few doctors who have experience doing that.
>Dr. Redan, Dr. Reich and Dr. Korell. The thing you want to avoid is open
>abdomen surgery since more adhesions can develop the more surgery you have.
>You also want someone experienced in the scope surgery who knows how long
>and tedious the surgery can be. My gyn was over her head, thought it was
>ovarian cancer and when she saw it was adhesions and a pseudocyst, just
>drained the cyst and closed me up. She also told me to live with the pain
>because no doctor would attempt to do any further surgery. That's when I
>found Dr. Redan at the forum.
>
>Let me know what your doctors says. It would help you if your gyn really
>believed that the pain you are having is from the adhesions. Most doctors
>don't believe that adhesions cause pain. My PCP believed me and helped me
>get a referral to Dr. Redan. If you can't go to Scranton or New York, Dr.
>Redan is more than willing to review your records and make recommendations
>to your gyn without any charge.
>
>Good luck, hope to hear from you soon.
>
>kathy

>>----- Original Message -----
>From: "wendy" <anonymous@medispecialty.com>
>To: "Multiple recipients of list ADHESIONS" <adhesions@forum.obgyn.net>
>Sent: Tuesday, January 09, 2001 10:19 AM
>Subject: Re: ?'s about adhesions(please help)(Kathy)
>
>> Thank you for your response. if you don't mind I want to give you a
>> little more information. I went a week without knowing that I was
>> having pain related to my appendix, when the hospital finally realized,
>> the second night in a row of going to the er, that my appendix was
>> rupturing. They scheduled me for surgery that next morning and removed
>> my appendix. A week or so later I devolped an abcess that was starting
>> to make my incison open up. I went to the doctor and they thought they
>> had a gas leak in the building but it was my abcess and it was the size
>> of a basketball.. From what my gyn said that all of this was the cause
>> of my adhesions. I am really worried that these will come back. I
>> wonder the adhesions related to all the cervicitis infections I had, or
>> if I really even had cervitictis or it was just the adhesions that was
>> causing the pelvic pain. I have a follow up with my gyn on the 18th. I
>> am just trying to find out what I am up against.
>>
>> At Mon, 8 Jan 2001, Kathy L. wrote:
>> >
>> >Hi Wendy:
>> >
>> >I read your posting and thought you might like to know about my history.
>> >I had a ruptured appendix 3 yrs ago that went undiagnosed for 1 week.
>> >Also diagnosed with chronic appendicitis since I have had pain in my
>> >right side periodically over the last 25 years with many laparoscopies,
>> >etc without diagnosis. Anyway, the surgery was life-threatening because
>> >of infection. The incision was left open to heal for 3 months, with
>> >visiting nurses to pack the wound twice a day. After a tough recovery I
>> >had back spasms and PT and chiropractor helped somewhat. The surgeon
>> >told me that everything was stuck to the back of my pelvis.
>> >
>> >In June of 2000 I had severe pain in the right side again and vomiting.
>> >I had a CT scan and it showed a very large growth. The gyn thought it
>> >was ovarian CA and operated (laparotomy) on July 10th. It turned out to
>> >be a large cyst of adhesions. The bladder, bowel, uterus, and pelvic
>> >wall were stuck together forming a "ball" that was filled with fluid.
>> >The right ovary and fallopian tube were inside of the adhesion "ball".
>> >The surgeon did not know how to separate the organs and just drained the
>> >fluid (over 450cc). I had pain return in 2 wks, the fluid reformed. I
>> >had problems with that incision healing, infection, needed home nurses
>> >again and the doctor told me to live with the pain because no surgeon
>> >would touch me with a 10 foot pole.
>> >
>> >That is when I found this web site. Thank God and all of the people who
>> >give information here. I had laparoscopic surgery with Dr. Redan in
>> >Scranton on November 22nd and he was able to separate (lyse) all of the
>> >adhesions, thereby removing the "pseudocyst" as he called it and no more
>> >fluid build up. I wonder if you have the same type of thing going on?
>> >Dr. Redan emailed me right away after I asked him if he ever heard of a
>> >fluid build up. He said that it is very common to have a "pseudocyst"
>> >form after a ruptured appendix. Also adhesions form easily because of
>> >the trauma and infection.
>> >
>> >My pain is gone. I only have slight discomfort from the surgery that is
>> >relieved with Tylenol or rest. I am returning to work on Jan 16th after
>> >being off since July.
>> >
>> >Sorry this was so long, but I wanted to let you know that this has
>> >happened to other people. I am sure you will get the necessary
>> >information from the people at this site. Good luck and keep up posted.
>> >
>> >--
>> >Kathy L.
>> >
>> >At Mon, 8 Jan 2001, wendy wrote:
>> >>
>> >>Thanks for responding, the adhesions were due to an appendectomy that i
>> >>had about 10 years ago. My gyn also stated that she could tell that I
>> >>had an infection also related to that surgery, in which I did.
>> >>
>> >>At Mon, 8 Jan 2001, Janet Karam wrote:
>> >>>
>> >>>Hi Wendy...Glad you found the site...I am thanking God every day that I
>have
>> >>>found it, as I searched for almost 2 years with no luck.
>> >>>
>> >>>Were the adhesions your doc found due to a post-surgical procedure, or
>> >>>endemetriosis?
>> >>>
>> >>>There lots of helpful information on this site. You can go to the
>> >>>archivesfor research...you can make search inquiries at the bottom of
>the
>> >>>message board page...enter adhesions, or endemetriosis, or adhesiolysis
>for
>> >>>example, and you will find alot! Also you may find it helpful to read
>> >>>through the personal stories on the Adhesion Quilt if you haven't
>already
>> >>>done so.
>> >>>
>> >>>I'd be glad to help in any way...let me know.
>> >>>
>> >>>Janet

>>> >>>----- Original Message -----
>> >>>From: "wendy" <anonymous@medispecialty.com>
>> >>>To: "Multiple recipients of list ADHESIONS" <adhesions@forum.obgyn.net>
>> >>>Sent: Monday, January 08, 2001 9:49 AM
>> >>>Subject: ?'s about adhesions(please help)
>> >>>
>> >>>> I just recently had a laproscopy done and my gyn found alot of
>adhesions
>> >>>> mainly on my right side. I was curious to know more about this
>> >>>> condition and what the possible treatment is.
>> >>>>
>>


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