Re: I'm home =)
From: Pam Markford (PJtweetyRN@aol.com)
Mon Dec 25 07:22:55 2000
At Sun, 24 Dec 2000, Nikiti wrote:
>
>At Sun, 24 Dec 2000, Kate Murphy wrote:
>>
>>On 24 Dec 2000, at 3:24, Nikiti wrote:
>>
>>> Hello all,
>>> I couldn't believe my eyes when I saw this site, I think I am still in
>>> shock! For YEARS I have been suffering with adhesions and pain, they
>>> said I have Asherman's Syndrome, which was explained to me as being
>>> (quote) "severe, dense adhesions that have pulled my insides together
>>> and stuck them like glue"...
>>
>>Dear Nikiti,
>>
>>Like you, I've had lots of surgery and have ended up with lots of
>>adhesions. I've developed a few little tricks for managing the
>>hospital recovery that help to calm me. Maybe they will help a
>>little with your new challenge.
>>
>>First of all, I buy myself a bar of sweet smelling soap -- I like
>>Yardley's and some nice hand lotion. Stuck through and through
>>with staples and NG tubes and catheters, I can still wash my face
>>and hands and feel human!
>>
>>I have a Walkman and tapes of music that I love. I listen to that at
>>night when it is hard to sleep. I also have some meditation tapes
>>for those times when I am waiting for some test or for the surgery
>>to begin.
>>
>>I have always been able to wear the Walkman into the OR. Until I
>>got a WM with an automatic turnaround, the anesthesiologist
>>would turn the tape over for me, even if I was deeply unconscious.
>>
>>I have a beautiful robe from Victoria's Secret which makes me feel
>>glamorous. I wear the hospital nighties so I won't destroy my own
>>with gunky stuff, but I have my robe for other times.
>>
>>I also bring some nice shampoo for that wonderful day when they
>>say -- you can have a shower now. They bring me a little shower
>>chair and I spend a long, luxurious time under the hot water with
>>sweet body wash and my fancy shampoo.
>>
>>This may all sound crazy to you, like I don't understand your pain
>>and the desperation of your situation. I do. These are just ways
>>that have helped me cope.
>>
>>Good luck with the upcoming surgery. You'll be OK!
>>
>>Love,
>>
>>Kate
>>
>>--
>>Kate Murphy
>>katemm@mindspring.com
>>
>Kate,
>Thank you for writing a reply to my letter =)
>You have many great ideas for how to cope with surgery...I guess I spend
>so much of my time worrying about how things are going to turn out and
>how much more pain I'm going to be in that I forgot to try and relax and
>make the best of a horrible situation. I have never met anyone like me
>before and so when I tell my fears to my family, doctor, or friends they
>do their best to be here for me but they don't truly understand... Thank
>you for your ideas and I am for sure going to try and do everything you
>suggested. I would do anything to just make this better. Thanks again
>Kate =o)
>Merry Christmas all.
>
>--Nikiti,
Please always remember that you are not alone! Many us like you have had
too many surgeries,surgeries that turn our insides to think about.I know
that it is very hard to stay positive but this is the only way in which
you can and will get through this surgery.I know that God is always
there in control and guiding the surgeons hands.We will all pray for the
Healing Touch of GOD on you and on the hands of the surgeons. Please
continue to write to us we are all with you now,and will want to know
how you are doing. You will have my email address now, so please us it.
I don't like to think of my stituation if the Angels of IAS had not
reached out their graceful comforting wings to help me and my husband
(who found this glorious site)! I have been through 16 or 17 surgeries
so I do understand as do the rest of the IAS family members. God Bless
you and your loving supportative family.
>~Nikiti
>
--
In Friendship, Pam Markford PJtweetyRN@aol.com