Re: Invisible Disabilities Advocate...Chronic Illness

From: Kate Murphy (katemm@mindspring.com)
Sun Dec 10 15:56:55 2000


<FontFamily><param>Times New Roman</param><bigger>On 9 Dec 2000, at 10:30, Helen Dynda wrote:

<FontFamily><param>Arial</param><smaller>[<FontFamily><param>Times New Roman</param><bigger>

<FontFamily><param>Arial</param><smaller>"Most people cannot comprehend what it is like to be sick day after day; because they are accustomed to going to the doctor, taking some medication and soon feeling better.<FontFamily><param>Times New Roman</param><bigger>



<FontFamily><param>Arial</param><smaller>"Often the most difficult part of having a chronic, debilitating illness, is the lack of support we encounter. People seem to be programmed to think that they have to see someone is bleeding before they can believe they are hurting. Unfortunately, they often ignore what we are saying, because they think we "look" fine."

Actually, I think it is more myself who cannot understand the real impact of my chronic illnesses. I have spent the fall waiting for the incision from my bowel obstruction surgery to heal. After three months the very last of the raw edges closed leaving a wide purple scar. It is healed at last . . .

But I am still exhausted after the slightest effort. I cannot walk more than a few steps on my own. A trip to the city to see a doctor leaves me too tired to eat dinner. I cough in the cold weather and ache all over -- and if I eat the wrong food, I hurt a lot.

Piled up on my desk and around my recliner are so many projects I want to finish and the strength is just not there to do it.

I don't look sick. But with each new acute episode of illness, I am left with a larger residue of fatigue, lack of strength, and reduced energy. What I could do last fall, I can't do this fall. What I could do five years ago, I cannot even imagine doing today.

Still, I cannot really understand that I am not the energetic, self- starter I was even eight years ago when my second and third cancers appeared.

I seem nibbled away!

This morning, a friend brought me Communion. I want to get up on Sunday mornings and go to church. It seems a simple enough task. I got to the doctor's office this week after all. But the thought simply cannot turn into reality for me.

I think my friend from church, my husband, my sisters actually understand this disability better than I do. I still expect to wake up, leap out of bed, and tear into all that I want to do . . .

Love to all,

Kate<FontFamily><param>Times New Roman</param><bigger>

<nofill> Kate Murphy katemm@mindspring.com


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