Re: suffering!

From: niko (nicko69@dingoblue.net.au)
Fri Dec 8 22:09:32 2000


Hey Lisa,

I know the frustration felt with adhesions, and getting the doctors to listen to the thousands of us with this chronic condition. No offense was taken honestly, I just feel that sometimes the doctors should rule out IBS as adhesion surgery can cause it too. Even though the tests I could most certainly do without.

I'm doing ok. My medications are all working for me now thanks, took two years, but I only have one life, and I'm trying my darndest to enjoy every minute possible ;-))

I pray for a gel that they can smear all over us, so we can be stickless, every night ;-))

Take care ....

Trace x

>----- Original Message -----
From: "Todd Palmer" <tpalmer266@jcn1.com> To: "Multiple recipients of list ADHESIONS" <adhesions@forum.obgyn.net> Sent: Saturday, December 09, 2000 10:51 AM Subject: Re: suffering!

> Hi Trace,
> Gee, I'm sorry about your surgeries. I didn't mean to imply that IBS is
not > a real problem at all. I just meant that it seems like adhesions get
> confused with IBS more often than not. I know that that too can be
> extremely painful. It's just that everyone I know that has adhesions has
> had their doctor tell them that it's IBS without the slightest chance or
> acceptance that adhesions can cause so much pain. Why would they think
that > adhesions don't cause pain? Mine were so massive that they had enveloped
> all of my organs. If that's not pain, I don't know what is. I hope you
are > doing well now though! Please forgive my ignorant implications!
> Lisa

>> ----- Original Message -----
> From: niko (awesome) <nicko69@dingoblue.net.au>
> To: Multiple recipients of list ADHESIONS
<adhesions@mail.medispecialty.com> > Sent: Friday, December 08, 2000 5:12 PM
> Subject: Re: suffering!
>
> > Hey Lisa ;-))
> >
> > I know that with two bowel operations under my belt, IBS is a reality
for > me
> > ;-)) It definitely gets irritated and took awhile to diagnose. Colofac
> > relieves the symptoms straight away. So I think the problem should be
made > > more aware as I wouldn't have had to deal with the unnecessary pain.
> >
> > Trace.
> >

>> > ----- Original Message -----
> > From: "Todd Palmer" <tpalmer266@jcn1.com>
> > To: "Multiple recipients of list ADHESIONS" <adhesions@forum.obgyn.net>
> > Sent: Saturday, December 09, 2000 6:25 AM
> > Subject: Re: suffering!
> >
> > > Hello Pain Pals,
> > > What is it with these doctors wanting to diagnose us all with IBS? Do
> > they
> > > reap some kind of royalties from the barium companies or what? I
don't > > > doubt that IBS does exist but this is ridiculous. I guess in med
school > > > they are taught "When all else fails, dx them with IBS" . I'm sure
> that
> > > what I did this a.m. was completely pain pill driven, but I e-mailed
> > Oprah.
> > > Wouldn't it be great if we actually got some publicity regarding our
> > > adhesions? If anyone could get the message out, it would be her! I
> > > seriously doubt my one little e-mail begging her for some help will do
> us
> > > any good, but if she started to receive more e-mails from us, we might
> > stand
> > > a snowball's chance. Like I said, it was my vicodin dulled brain that
> > made
> > > me do it. (hehe) What else is there to do with an icepack on my
tummy > > > recouping from surgery # 7? I guess I'll just wait & see. I did get a
> > > return e-mail from her folks thanking me for my letter. I know that
it > > was
> > > just a formality but keep your fingers crossed! Take care all!
> > > Lisa

>> > > ----- Original Message -----
> > > From: jenny <sunnybrae@cwcom.net>
> > > To: Multiple recipients of list ADHESIONS
> > <adhesions@mail.medispecialty.com>
> > > Sent: Friday, December 08, 2000 1:46 PM
> > > Subject: suffering!
> > >
> > > > Hello all,
> > > > I don't post often, but I've been following the fortunes of you
all - > > > > particularly those who have been to Germany.
> > > > A year ago tomorrow, I underwent surgery, to remove a remaining
ovary > > > > and adhesions, following a TAH 15 years previously. I spent 10
happy > > > > months pain free. In the last few months, pain has returned. I saw
a > > > > general surgeon this week who has told me that he thinks that I have
> > > > irritable bowel syndrome, despite the fact that I ahve few bowel
> > > > symptoms. I have to have a barium enema, which he says that he
> expects
> > > > to be normal, following which he will 'label' (his words!) with the
> > > > diagnosis of IBS. He says that if this is the case, then most
people > > > > are reasuured by the fact that they can be told that they do not
have > a
> > > > cancer and that he expects that my symptoms will disappear. He told
> me
> > > > that adhesions do not cause pain!!!!! Until the results of the
barium > he
> > > > will do nothing. Why does he not realise that the pain is here and
> now.
> > > > Thank god for an understanding and endlessly sympathetic GP who has
> > > > referred me to a pain clinic. I am at the end of my tether. So few
> > > > seem to understand. I know that you all will.
> > > > Thanks for listening to my ramblings.
> > > > love,
> > > > Jenny
> > > >
> > > > to the unsubscribe form at
> http://www.adhesions.org/forums/listcmds.htm
> > > >
> > >
> > > to the unsubscribe form at

http://www.adhesions.org/forums/listcmds.htm > > >
> >
>


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