Re: Abandoned....my docs have given up

From: Andrea (anonymous@medispecialty.com)
Wed Nov 29 13:37:01 2000


Kathy, Susan, and the rest of you,

I had no idea there were so many people out there with these medical problems. I have a pseudocyst, that due to my history is probably not reproductively related but here I am on the merry-go-round with my my pcp,ob/gyn, general surgeon, and neurosurgeon with no avail. This "thing" has been visible since 1993 but is just now being looked at. I've had it, my pre-occupation with my health is interferring with school, my social life, and my poor parents are suffering through several hysterical phone calls a day from me complaining that no one will treat me (we're waiting for the results from an ultrasound scheduled 3 weeks from now). I'm trying to treat this preventatively. I don't want to deal with this in an emergency situation and I don't want to be treated with narcotics for pain- I want them to resolve the source of the problem but they've stopped listening and I keep waiting. There's nothing else I can do at this point but hope that this onset of pain is not indicative of something more serious and promise everyone that once I get through med-school I swear I will never put my patients in the positions that my doc's have put me in.

--
Andrea
At Sun,  8 Oct 2000, Kathy L. wrote:
>
>Dear Susan:
>
>You absolutely must email Dr.  Redan.  He will get back to you quickly
>and let you know if he can help.  I have a psuedocyst that developed
>after a ruptured appendix.  I have many other adhesions that cause me
>moderate pain, but this caused severe pain.  A gyn operated and drained
>it, it filled up again in 2 wks.  I have rectal pressure and a stabbing
>pain in my right lower abdomen and pelvic floor pain.  Are your symptoms
>anything like that? Dr.  Redan told me he can help and I am having
>surgery sometime in November.  There is hope out there so don't give up.
>I know it's hard when the doctors won't listen.
>
>Take Care,
>
>kathy L
>
>At Sun, 8 Oct 2000, Susan_OR wrote:
>>
>>Hi everyone...
>>
>>Here I am, still in constant pain.  No relief, and no hope of relief
>>because my docs have pretty much written me off.  I have called my
>>gyn/oncologist 3 times and she never called back.  Even when I begged
>>the receptionist to please put on the message that I was desperate and
>>getting no help.  My regular gyn is taking care of my pap smears every
>>few months but isn't willing to address the pain issue or do anything
>>about it.  She passed me on to my primary care doc.  My primary care doc
>>prescribed narcotics for awhile but will no longer prescribe them.  She
>>has referred me to a pain clinic and a psychiatrist.  I went to the pain
>>clinic once but they made me so mad, I just can't see myself going back
>>there and actually giving it a chance.  So now I am left with a
>>psychiatrist appointment next week and that's it.  None of my docs are
>>doing anything to help the pain.  I'm 29 with no hope of ever getting
>>relief.  Heck, I can't even get a few hours of relief because my docs
>>won't prescribe pain meds anymore.  Thier only reasoning behind that is
>>that I've been on them too long and they don't want me to get addicted.
>>So I am left with nothing.  The docs all say that the lymphatic cyst I
>>have isn't big enough (although it is the size of a baseball) to be
>>causing the type of pain I am experiencing and that adhesions aren't
>>painful.  I seriously disagree but they won't listen.  The CT scan
>>showed nothing except the baseball size cyst so they don't know what
>>else to do.  So where does that leave me? In pain and miserable with no
>>hope of ever getting better.  I also have Fibromyalgia and I think that
>>probably is contributing to the amount of pain I am feeling but, of
>>course, when docs hear I have FM...they automatically write me off as a
>>mental case.  I am seriously considering sending my medical info to Drs.
>>Reich and Redan and I think they may be last hope.  The pain is so bad
>>right now I would do just about anything for a single pain pill...just
>>to get an hour or two of reduced pain.  Regardless of what the
>>constitution says, Cruel and unusual punishment is alive and well in the
>>US.  I am so frustrated and really losing hope fast....somebody has to
>>be able to do something!
>>
>>Thanks for always being here...I would have lost my mind long ago
>>without you.
>>
>>Take Care,
>>Susan

Enter keywords:
Returns per screen: Require all keywords: